Maybe I should start it off with “Dear Weather,” but I guess I’ll stick with the facts. The weather has been interesting. And two-hour delays are for the snowbirds. Or so we think. I would have to say it is probably harder on me with my nerves of spaghetti happening after the hundredth time Owen has asked me “how much time on my timer” but here we are in winter and if there is one thing I know winter is good at wintering when you have other plans.
I did not tell him right away that there was a two-hour delay but I knew the questions would be coming in quickly as soon as he could tell we weren’t getting ready. He was pretty calm at first but as the realization that we weren’t getting dressed began to form it set him in panic mode about what was going to happen today and all his days ahead. He wanted no delays so that he could go to his therapy. He had waited several months for it all to return back to his full routine and he wanted his full day to happen.
He was finally off and boy was he thrilled. The bus app was working even though I questioned it several times I think because I was asked a million times about whether it was working. Honestly, I think a two-hour delay is so much harder on him than saying it is a snow day and we have to stay home. Or maybe it is harder on me. He can’t handle the delay of the bus not coming when it is supposed to. And distracting him on days like this takes every ounce of what I’ve got to keep him from having a meltdown. “How much time on my timer” with his invisible watch directly in front of my face is how he gets through these moments. Redirecting him with music, books, food, or anything else is almost impossible. There is no comfort for him when he can’t do what he wants when he wants to do it.
I picked him up from school and his teacher said he had a good day. I know it is a very quick day for them by the time the kids get there and they go through all the steps. He was happy to get to therapy and talked to me the whole time we were heading there. He was informing me of all the things that have happened over the years, what he wants to happen, and who he wants to see. He started listing everyone he knows instead of just asking about one person. It’s kind of like his prayers. If he knows the person he has prayed for them.
He wanted to sit on the steps at his therapy place but it was so cold and they were very icy. I didn’t let him out of the car until right when I knew his therapist would come get him. He doesn’t always tell me when he is cold or hot so I try to err on the cautious side. He is not always thrilled with this decision but I try to find the middle ground. Truly he is only out in the weather for a few minutes at a time when it is very cold but I want him to learn to think through the process of what he should be wearing in these situations. “Pants degrees” versus “shorts degrees” is how he describes cold and hot weather. It is a start and I know he will continue to make more connections.
Pizza was the talk of the town when he went to therapy so I was wondering if he would stick with it after it was done. “Mushrooms black olives sausage and pepperoni pizza,” he said after he came out with his therapist. She said he did fabulous. She said he still had his questions but he followed through with all the exercises. He still has difficulty walking on things like a balance beam and is not always aware of his body movements. He has a hard time looking at something you want him to focus on and instead looks everywhere else which makes it even harder for him to walk straight. He has come a long way but he still does things like twirling on stairs when you least expect it.
We got home with our pizza and he was back to talking about tomorrow. He wanted to make sure I knew he was going to school, coming home, and staying home until Saturday when he is going to grandma’s house. I told him it sounded good to me especially since winter is very much wintering at the moment and it is cold. Hopefully, no surprise snow will come tomorrow, and no delays. “I am gonnaing to wear my shark shirt and little blue jeans and black shoes at Grandma’s house next Saturday,” he said before he went to bed. I asked him about this Saturday.
He was very ready to go to bed so he could get to school. It’s amazing what he prays about. I always pray first and tonight he was interrupting every thing I was saying and adding something. I told him he would have his turn and I would hurry up my prayer. I just laughed. I said God our boy has a lot to say it’s his turn. Owen’s prayer tonight was “Dear God keep up the good work. Amen.” He also prayed for his teacher and his class. I’m thankful for a good day and a smiley, happy boy. His smile is the best and makes my day. Keep pouring your love into the world and the world will love you back. Smiles to all and donut daze!
I did not tell him right away that there was a two-hour delay but I knew the questions would be coming in quickly as soon as he could tell we weren’t getting ready. He was pretty calm at first but as the realization that we weren’t getting dressed began to form it set him in panic mode about what was going to happen today and all his days ahead. He wanted no delays so that he could go to his therapy. He had waited several months for it all to return back to his full routine and he wanted his full day to happen.
He was finally off and boy was he thrilled. The bus app was working even though I questioned it several times I think because I was asked a million times about whether it was working. Honestly, I think a two-hour delay is so much harder on him than saying it is a snow day and we have to stay home. Or maybe it is harder on me. He can’t handle the delay of the bus not coming when it is supposed to. And distracting him on days like this takes every ounce of what I’ve got to keep him from having a meltdown. “How much time on my timer” with his invisible watch directly in front of my face is how he gets through these moments. Redirecting him with music, books, food, or anything else is almost impossible. There is no comfort for him when he can’t do what he wants when he wants to do it.
I picked him up from school and his teacher said he had a good day. I know it is a very quick day for them by the time the kids get there and they go through all the steps. He was happy to get to therapy and talked to me the whole time we were heading there. He was informing me of all the things that have happened over the years, what he wants to happen, and who he wants to see. He started listing everyone he knows instead of just asking about one person. It’s kind of like his prayers. If he knows the person he has prayed for them.
He wanted to sit on the steps at his therapy place but it was so cold and they were very icy. I didn’t let him out of the car until right when I knew his therapist would come get him. He doesn’t always tell me when he is cold or hot so I try to err on the cautious side. He is not always thrilled with this decision but I try to find the middle ground. Truly he is only out in the weather for a few minutes at a time when it is very cold but I want him to learn to think through the process of what he should be wearing in these situations. “Pants degrees” versus “shorts degrees” is how he describes cold and hot weather. It is a start and I know he will continue to make more connections.
Pizza was the talk of the town when he went to therapy so I was wondering if he would stick with it after it was done. “Mushrooms black olives sausage and pepperoni pizza,” he said after he came out with his therapist. She said he did fabulous. She said he still had his questions but he followed through with all the exercises. He still has difficulty walking on things like a balance beam and is not always aware of his body movements. He has a hard time looking at something you want him to focus on and instead looks everywhere else which makes it even harder for him to walk straight. He has come a long way but he still does things like twirling on stairs when you least expect it.
We got home with our pizza and he was back to talking about tomorrow. He wanted to make sure I knew he was going to school, coming home, and staying home until Saturday when he is going to grandma’s house. I told him it sounded good to me especially since winter is very much wintering at the moment and it is cold. Hopefully, no surprise snow will come tomorrow, and no delays. “I am gonnaing to wear my shark shirt and little blue jeans and black shoes at Grandma’s house next Saturday,” he said before he went to bed. I asked him about this Saturday.
He was very ready to go to bed so he could get to school. It’s amazing what he prays about. I always pray first and tonight he was interrupting every thing I was saying and adding something. I told him he would have his turn and I would hurry up my prayer. I just laughed. I said God our boy has a lot to say it’s his turn. Owen’s prayer tonight was “Dear God keep up the good work. Amen.” He also prayed for his teacher and his class. I’m thankful for a good day and a smiley, happy boy. His smile is the best and makes my day. Keep pouring your love into the world and the world will love you back. Smiles to all and donut daze!
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