Owen slept until about four. I slept around the time he was asleep. He was very much ready for his day to go according to plan and his plan was to not go on the field trip. I'm not sure why field trips have become so hard for him.
He sat very calmly under my blankets on my bed listening to his tablet at full volume. This was after I said it was quiet time. My bed has become his new go-to spot until it is time to get ready for school. He used to sit on the couch or go lay back in his bed but now it’s my bed.
He was calm this morning, but he definitely did not want to go to his field trip and kept telling me that he didn’t wanna go. I told him it was up to him and he could stay at school. He asked if he could stay home and I told him he could if he didn’t want to go, but it was up to him to not go on his field trip and he could stay at school.
His teacher asked him again when he got to school but he still wanted to stay there even though she was going this time. I know he has got to have a lot on his mind. I knew she would do what was best for him at the moment if he had ended up changing his mind.
I had my radiation appointment and met with the chemo doctor’s assistant. Everything went smoothly and my tests were fine. I will get my lab reports back in the next few days and start my infusions again after my radiation is done.
I sit so much of our days trying to keep him calmer. When Owen got home he was still upset about the field trip. They sent a note home saying that he didn’t go. He was however still having a meltdown over the fact that one day he may have to go on another field trip. I told him he didn’t have to go again and he started saying “No more field trips ever.”
I think it’s too much pressure for him right now to go do something else when he wants to stick with his routine. He said he wanted to stay home this morning so I know he is processing it and I think it is too much for him to think about. I wonder if I go or take him if it would be happier times for him. I sat which made him happier so he didn’t have to process what I was doing. If I attempt to do anything the meltdown becomes stronger.
Makes me sad that he couldn’t go to something fun but he doesn’t want to do a lot of things that are group-related like baseball or soccer activities so maybe it’s too many moving parts for him. I asked him about going to the Special Olympics events and he said, “Never again go to field trip.”
He wanted me to put on my bunny ears but I told him it was too hot. I said he could wear them if he wanted and he put them on. I didn’t wear them all night. I’m trying to get him to handle my hair. It is still hard for him to process.
He calmed down as the night went on. He got in the bath and that helped calm him even more. He wanted to make sure he was going to see his therapist tomorrow. I had already told him one of his therapists would be there. Once I confirmed he was going he said he wanted to see his therapist, be happy, and get Tudors afterward. I told him I would take him to Tudors for chicken strips if he was happy tomorrow. He said he would so I pray he has a calm day.
He has now decided that my bed is where he wants to be before he goes to bed as well. Under the blanket, he goes. I told him that yesterday I was going to give him my bed and I was going to take the tent off his bed and claim it as mine. He said no but I’m considering it.
Bedtime was quick tonight and he didn’t get out of bed once he was in it. I pray he sleeps all night but I’m sure he still has a lot on his mind. I’m thankful the night was calmer once he settled in. The laughter came as nighttime fell and for that I was thankful. Enjoy the little things for they are truly what matters. Smiles to all and donut daze!
He sat very calmly under my blankets on my bed listening to his tablet at full volume. This was after I said it was quiet time. My bed has become his new go-to spot until it is time to get ready for school. He used to sit on the couch or go lay back in his bed but now it’s my bed.
He was calm this morning, but he definitely did not want to go to his field trip and kept telling me that he didn’t wanna go. I told him it was up to him and he could stay at school. He asked if he could stay home and I told him he could if he didn’t want to go, but it was up to him to not go on his field trip and he could stay at school.
His teacher asked him again when he got to school but he still wanted to stay there even though she was going this time. I know he has got to have a lot on his mind. I knew she would do what was best for him at the moment if he had ended up changing his mind.
I had my radiation appointment and met with the chemo doctor’s assistant. Everything went smoothly and my tests were fine. I will get my lab reports back in the next few days and start my infusions again after my radiation is done.
I sit so much of our days trying to keep him calmer. When Owen got home he was still upset about the field trip. They sent a note home saying that he didn’t go. He was however still having a meltdown over the fact that one day he may have to go on another field trip. I told him he didn’t have to go again and he started saying “No more field trips ever.”
I think it’s too much pressure for him right now to go do something else when he wants to stick with his routine. He said he wanted to stay home this morning so I know he is processing it and I think it is too much for him to think about. I wonder if I go or take him if it would be happier times for him. I sat which made him happier so he didn’t have to process what I was doing. If I attempt to do anything the meltdown becomes stronger.
Makes me sad that he couldn’t go to something fun but he doesn’t want to do a lot of things that are group-related like baseball or soccer activities so maybe it’s too many moving parts for him. I asked him about going to the Special Olympics events and he said, “Never again go to field trip.”
He wanted me to put on my bunny ears but I told him it was too hot. I said he could wear them if he wanted and he put them on. I didn’t wear them all night. I’m trying to get him to handle my hair. It is still hard for him to process.
He calmed down as the night went on. He got in the bath and that helped calm him even more. He wanted to make sure he was going to see his therapist tomorrow. I had already told him one of his therapists would be there. Once I confirmed he was going he said he wanted to see his therapist, be happy, and get Tudors afterward. I told him I would take him to Tudors for chicken strips if he was happy tomorrow. He said he would so I pray he has a calm day.
He has now decided that my bed is where he wants to be before he goes to bed as well. Under the blanket, he goes. I told him that yesterday I was going to give him my bed and I was going to take the tent off his bed and claim it as mine. He said no but I’m considering it.
Bedtime was quick tonight and he didn’t get out of bed once he was in it. I pray he sleeps all night but I’m sure he still has a lot on his mind. I’m thankful the night was calmer once he settled in. The laughter came as nighttime fell and for that I was thankful. Enjoy the little things for they are truly what matters. Smiles to all and donut daze!
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