We were in the relatively calm category for all the unknowns ahead when Owen first woke up. It quickly changed. His people have been listed and the excitement of talking to all of them was on the horizon. That was a cause for celebration. I was very thankful he was happy this morning even though he was anxious to see if everyone was going to be where they should be.
He kept saying “I can’t begin to tell you.” It was a phrase I have used a few times when the impossible has been asked of me as if he was going to see his best friend. I need to state the facts instead of leaving room for interpretation but when I don’t know, I don’t know, and I can’t tell him. He does better when he knows the details but he calls my bluff when I don’t know something and he can read me like a book. I need to try harder to remember how to answer very specifically when he is going down the rabbit hole but my brain responds in flowers and wagging puppy dog tails when he needs straight facts.
“It rains in April use the wipers go to grandma’s house,” he said, and quickly flowed into talking about going to school. I told him that we would soon be getting ready and I reminded him that it was trash day. He was very helpful without getting too upset. Directions can be very hard for him to understand and he doesn’t always follow through with the steps that I give him. I have to go back through each step multiple times to keep him from being overwhelmed. We got outside early again because the bus app stopped working, but it wasn’t long and he was off to school.
I went to pick him up for his music therapy and his teacher said he had a good day. On the way to therapy, he was telling me all about the kids in his class and then he started asking if his best friend would be in his class next year. I tried to tell him that he will not be going to his school, but it’s so hard for him because he really wants him there. He did well with his therapy. While we were there, I had his therapist confirm that his friend would not be at camp. This did not stop him from asking on the way home if he would be there I asked him if he would be there and he said no so he knows the answer but it’s not the answer he wants.
The top three things that we discussed after I picked him up are if his friend was sad at lunch, if he was going to camp, and what he will be wearing to trunk or treat. From there it was if he could wear “skinny jeans tomorrow,” his words, and “little blue jeans” on Saturday. He is planning a bowling trip in a couple of weeks and when I asked if he wanted his birthday party at the bowling alley he said at the indoor pool and the bowling alley which was a huge step forward in the whole birthday party extravaganza. To say I’m excited is an understatement for him to even be talking about it is a big deal.
He has declared today pizza day after several versions of what the day’s menu would be and then it changed. He was very excited about doing the exercises in therapy. He told me he had to work hard on the exercises and he did extremely well while he was there. He of course, answered everything in O fashion but he has come so far. We got Wendy’s when we left and he was very excited to get his chicken nuggets, honey, mustard, plain cheeseburger, french fries, and iced tea for me. He always tells me that they have chocolate milk, but I’m going to get iced tea.
He was relatively calm for the rest of the evening, but still requested information on summer camp, trunk or treat, and what he would be doing in April. He was very ready for bedtime so that he could go to school again tomorrow and see what everyone was going to be doing. I’m thankful he has been sleeping so well and I hope the days ahead do not get spoiled for him with snow. I’m thankful for the songs he sings that fill my heart. Let your heart be filled with gladness, and the song of your soul shine bright for the world. Smiles to all and donut daze!
He kept saying “I can’t begin to tell you.” It was a phrase I have used a few times when the impossible has been asked of me as if he was going to see his best friend. I need to state the facts instead of leaving room for interpretation but when I don’t know, I don’t know, and I can’t tell him. He does better when he knows the details but he calls my bluff when I don’t know something and he can read me like a book. I need to try harder to remember how to answer very specifically when he is going down the rabbit hole but my brain responds in flowers and wagging puppy dog tails when he needs straight facts.
“It rains in April use the wipers go to grandma’s house,” he said, and quickly flowed into talking about going to school. I told him that we would soon be getting ready and I reminded him that it was trash day. He was very helpful without getting too upset. Directions can be very hard for him to understand and he doesn’t always follow through with the steps that I give him. I have to go back through each step multiple times to keep him from being overwhelmed. We got outside early again because the bus app stopped working, but it wasn’t long and he was off to school.
I went to pick him up for his music therapy and his teacher said he had a good day. On the way to therapy, he was telling me all about the kids in his class and then he started asking if his best friend would be in his class next year. I tried to tell him that he will not be going to his school, but it’s so hard for him because he really wants him there. He did well with his therapy. While we were there, I had his therapist confirm that his friend would not be at camp. This did not stop him from asking on the way home if he would be there I asked him if he would be there and he said no so he knows the answer but it’s not the answer he wants.
The top three things that we discussed after I picked him up are if his friend was sad at lunch, if he was going to camp, and what he will be wearing to trunk or treat. From there it was if he could wear “skinny jeans tomorrow,” his words, and “little blue jeans” on Saturday. He is planning a bowling trip in a couple of weeks and when I asked if he wanted his birthday party at the bowling alley he said at the indoor pool and the bowling alley which was a huge step forward in the whole birthday party extravaganza. To say I’m excited is an understatement for him to even be talking about it is a big deal.
He has declared today pizza day after several versions of what the day’s menu would be and then it changed. He was very excited about doing the exercises in therapy. He told me he had to work hard on the exercises and he did extremely well while he was there. He of course, answered everything in O fashion but he has come so far. We got Wendy’s when we left and he was very excited to get his chicken nuggets, honey, mustard, plain cheeseburger, french fries, and iced tea for me. He always tells me that they have chocolate milk, but I’m going to get iced tea.
He was relatively calm for the rest of the evening, but still requested information on summer camp, trunk or treat, and what he would be doing in April. He was very ready for bedtime so that he could go to school again tomorrow and see what everyone was going to be doing. I’m thankful he has been sleeping so well and I hope the days ahead do not get spoiled for him with snow. I’m thankful for the songs he sings that fill my heart. Let your heart be filled with gladness, and the song of your soul shine bright for the world. Smiles to all and donut daze!
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