There was not much sleep for either of us last night but surprisingly I didn’t feel exhausted like I had been. I woke up numerous times to go to the bathroom and then the last time at three Owen got up. My stomach was a tiny bit uncooperative but it wasn’t bad. I ate some crackers and it was much better. I can tell I tried to mix too many foods too late in the night.
Owen was very concerned about Friday not being school yet. He is so ready for his day. I tried to get him to go back to bed but he wanted his tablet and that was that. After the initial first few interactions about his tablet, he remained calm for most of the day, only being upset at a few moments as the day wore on.
The morning was spent talking about how many days were left until school started again, who was going to be there, and that it would still be summer break on Friday. He is struggling with the timing of all the days. I wish I had a better way to make the connection for him but I’m thankful he is at least looking at the calendar with me and talking about the notes he uses with my mom for their days. It is huge progress.
We went to his music therapy today and he did well. That made me so happy since last week was so hard for him. She told me there were even distractions with one of the lights in the room so they had to move but he handled the transition well. Once again I felt like it was huge progress.
When we came home he was calm all the way to the one last stop sign. As soon as I put on my turn signal the screams erupted and it was an instant meltdown. I’m not sure why today was harder with turns and roads and other days they are not. I’m sure there are many factors but I always wish I knew how to help him. Thankfully by the time we turned our last turn, he was fine.
The rest of the day was spent with him trying to figure out how to convince me that he could see his grandma on Friday. He is going to be with her tomorrow but he was still very focused on Friday. This question did not stop all day. She has a few things she needs to do but hopefully, it will work out so he can.
The laughter filled the air once again especially the closer it got to bedtime. He was singing a lot and watching the shadows fill the room. I’m always amazed at what he comes up with to ask Siri and Alexa to translate. He was yawning at bedtime and out quickly. Tomorrow is a big day for him. He will meet a new speech therapist so I’m hoping it all goes well.
Today was probably my roughest day. The fatigue wasn’t as bad but nothing tasted good and my stomach stayed a little upset all day but truly feel blessed and praying for another great day tomorrow. Every single day is a gift. Love hard, be kind, and experience gratitude. Life should be about joy. Smiles to all and donut daze!
Owen was very concerned about Friday not being school yet. He is so ready for his day. I tried to get him to go back to bed but he wanted his tablet and that was that. After the initial first few interactions about his tablet, he remained calm for most of the day, only being upset at a few moments as the day wore on.
The morning was spent talking about how many days were left until school started again, who was going to be there, and that it would still be summer break on Friday. He is struggling with the timing of all the days. I wish I had a better way to make the connection for him but I’m thankful he is at least looking at the calendar with me and talking about the notes he uses with my mom for their days. It is huge progress.
We went to his music therapy today and he did well. That made me so happy since last week was so hard for him. She told me there were even distractions with one of the lights in the room so they had to move but he handled the transition well. Once again I felt like it was huge progress.
When we came home he was calm all the way to the one last stop sign. As soon as I put on my turn signal the screams erupted and it was an instant meltdown. I’m not sure why today was harder with turns and roads and other days they are not. I’m sure there are many factors but I always wish I knew how to help him. Thankfully by the time we turned our last turn, he was fine.
The rest of the day was spent with him trying to figure out how to convince me that he could see his grandma on Friday. He is going to be with her tomorrow but he was still very focused on Friday. This question did not stop all day. She has a few things she needs to do but hopefully, it will work out so he can.
The laughter filled the air once again especially the closer it got to bedtime. He was singing a lot and watching the shadows fill the room. I’m always amazed at what he comes up with to ask Siri and Alexa to translate. He was yawning at bedtime and out quickly. Tomorrow is a big day for him. He will meet a new speech therapist so I’m hoping it all goes well.
Today was probably my roughest day. The fatigue wasn’t as bad but nothing tasted good and my stomach stayed a little upset all day but truly feel blessed and praying for another great day tomorrow. Every single day is a gift. Love hard, be kind, and experience gratitude. Life should be about joy. Smiles to all and donut daze!
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