What a difference a day makes and oh how thankful I am for it. It was a much better night and a great morning. I think Owen was processing yesterday and understanding more of what happened. He told me that we can celebrate Mother’s Day next Sunday. I explained it was like birthdays that come once a year. He told me “Celebrate Sunday anyway.” He was very calm and seemed to be well on the mend.
He spent some of the morning playing his drum and talking to me about his day. He told me that he was going to music therapy and that he had to do his exercises at vision therapy. I reminded him that his focus did not need to be on his doctor’s clothing or gum and he said, “Do the exercises.”
After going in circles yesterday with both of our emotions circling through my mind Owen was much calmer about the events of yesterday and able to express some of his own emotions. I was thankful for that. He told me “Happy Mother’s Day” without me asking him or prompting him in any way. He mentioned that my birthday could be celebrated another day and told me I could have donuts. I feel like some days he gets stuck in a moment and he can’t let go of what he is thinking about. He was so upset at one o’clock in the morning that it just kept trickling down to all the hours of the day. Once his mind settled he could think about everything forward again. I always tell him we have to keep looking forward. He said to me “It’s forward Mommy” and I know he was thinking about today.
I didn’t tell him but his grandma was going to pick him up again to take him to music therapy. In case something had to change I didn’t want him to get upset if she wasn’t there to get him. My mom said he did great at music and when he was with her. I was thankful for that win for the day.
She brought him to me for his vision therapy appointment. He did much better today. He still was laser focused on his doctor having gum but at least he was able to concentrate on the exercises. He read with her and was able to say the right answers the first time around on most of the things which is a huge deal. It was a big difference from the last few weeks.
We came home and he was talking about all the things that were not going to happen mixed with the things that were going to happen. It’s sometimes hard to follow through all the stepping stones that are sometimes minefields that lead to meltdowns. He can say the wrong thing constantly but when I say the wrong thing once it is screams like no comparison. I tried to keep him on track of what he was doing tomorrow and I’m also reminding him that we have already talked about it so he knows the answer.
Tomorrow I go for my third infusion out of eleven. The last three weeks have reminded me that I’m thankful for being on this side of the journey. These infusions are nothing like the chemo infusions but they still make my stomach feel like it is on a rock n roll tour followed by the lack of sleep that tour provides. But oh how blessed I am to be one step closer to the finish line. Yesterday was a reminder to continue to look at the good stuff and tomorrow it is by the grace of God that I am where I am in this journey.
I’m thankful Owen slept all night and I pray for that repeat performance tonight. He once again fell asleep in my bed but I was able to get him to go to his. He keeps telling me he wants my bed so we will see where that leads. He is ready to be in school all day tomorrow and tell his teacher that his friend will be at their school in August. Oh, what a glorious day that will be for my boy. I’m thankful for his smile and a much better day. The challenge of a hard day is letting it go, being brave to face the next day, and knowing that you can thrive after you survive. Smiles to all and donut daze!
He spent some of the morning playing his drum and talking to me about his day. He told me that he was going to music therapy and that he had to do his exercises at vision therapy. I reminded him that his focus did not need to be on his doctor’s clothing or gum and he said, “Do the exercises.”
After going in circles yesterday with both of our emotions circling through my mind Owen was much calmer about the events of yesterday and able to express some of his own emotions. I was thankful for that. He told me “Happy Mother’s Day” without me asking him or prompting him in any way. He mentioned that my birthday could be celebrated another day and told me I could have donuts. I feel like some days he gets stuck in a moment and he can’t let go of what he is thinking about. He was so upset at one o’clock in the morning that it just kept trickling down to all the hours of the day. Once his mind settled he could think about everything forward again. I always tell him we have to keep looking forward. He said to me “It’s forward Mommy” and I know he was thinking about today.
I didn’t tell him but his grandma was going to pick him up again to take him to music therapy. In case something had to change I didn’t want him to get upset if she wasn’t there to get him. My mom said he did great at music and when he was with her. I was thankful for that win for the day.
She brought him to me for his vision therapy appointment. He did much better today. He still was laser focused on his doctor having gum but at least he was able to concentrate on the exercises. He read with her and was able to say the right answers the first time around on most of the things which is a huge deal. It was a big difference from the last few weeks.
We came home and he was talking about all the things that were not going to happen mixed with the things that were going to happen. It’s sometimes hard to follow through all the stepping stones that are sometimes minefields that lead to meltdowns. He can say the wrong thing constantly but when I say the wrong thing once it is screams like no comparison. I tried to keep him on track of what he was doing tomorrow and I’m also reminding him that we have already talked about it so he knows the answer.
Tomorrow I go for my third infusion out of eleven. The last three weeks have reminded me that I’m thankful for being on this side of the journey. These infusions are nothing like the chemo infusions but they still make my stomach feel like it is on a rock n roll tour followed by the lack of sleep that tour provides. But oh how blessed I am to be one step closer to the finish line. Yesterday was a reminder to continue to look at the good stuff and tomorrow it is by the grace of God that I am where I am in this journey.
I’m thankful Owen slept all night and I pray for that repeat performance tonight. He once again fell asleep in my bed but I was able to get him to go to his. He keeps telling me he wants my bed so we will see where that leads. He is ready to be in school all day tomorrow and tell his teacher that his friend will be at their school in August. Oh, what a glorious day that will be for my boy. I’m thankful for his smile and a much better day. The challenge of a hard day is letting it go, being brave to face the next day, and knowing that you can thrive after you survive. Smiles to all and donut daze!
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