Today was the best morning for a very happy Owen. He woke up in a good mood and started immediately talking about his plans for the week. Wednesday school and then he wanted his grandma to pick him up, Thursday school and then I will pick him up for therapy, Friday school and stay home, Saturday bowling trip with his friends and then grandma’s house, and Sunday church and go to the “Bible Center Church Arby’s.” He has planned it down to the last ponytail holder and clothes that people will wear.
At this point, all the days are blending together and 14 degrees feels quite toasty. Owen’s nose was being nosy and that was not how I wanted our day to go. Before he even got out of bed he sneezed three times. He sounded nasally but he had no fever. I gave him some medicine and I hoped it would be gone before it started again.
He walked around analyzing the picture of him with his best friend at trunk or treat. This would become the theme of the day. He then told me about all the people in the background. In the picture, there is a super-sized pencil. He talked about eating the eraser as he did at school. Oh boy! Even super-sized sized he wants to eat it. I’m thankful there was no glue stick in the picture. I cannot get him to understand that licking and biting these types of things are not a good idea but the more you show any type of emotion about something the more it becomes our very pronounced reality.
I was between ice and a hard place and I sure didn’t want to rock any boats. I felt like I should stick with my plan of telling him we were not going anywhere until Wednesday. I was concerned that they would not have school on Monday because the ice hasn’t melted. I wasn’t going to let that control all my plans but it was easier to stick with it since he was on board and it helped him focus on an end date. Plus the mountain of ice that I faced if we went anywhere. I have a hard time walking on solid ground so I didn’t want to risk it today. Add in his nose and I stopped overthinking it.
For the boy who has never requested a party, he has now requested every party he can imagine. He wants a school party with hats, birthday glasses, and cupcakes. He also wants to have a bowling birthday plus his pool party that is already in motion. He also mentioned that Valentine’s Day was coming up and you had to be kind to everybody. There were so many more requests and ideas for the holidays.
He was walking around with his tablet and he was saying “I love you so very much I appreciate you” and other things I couldn’t hear. Then he said, “See Grandma on Wednesday.” I asked him if I could see his tablet and he showed me the screen. It was the text messages from his grandma. I said you can send her a message so he told me he wanted to say “I love you.” He typed it out with me helping him sound it out. He then told me he wanted his phone in his pocket. He put his jeans on and he at first wanted it in his front pocket but within a few minutes, he came back to me and wanted me to help him put it in his back pocket. The amount of growth is incredible.
His new information download to me was all the restaurants that did not serve him the correct temperature of food, forgot food, did not include the right, enough, or no sauces, and those that did not put our stuff in the bag he wanted. And of course which ones have what drinks and the color of the caps for the chocolate milk. On and on he went. The information he stored is like having a walking computer.
I think this is where our tides turned for the afternoon. Oh my. I threw a wrench in his thought process. He was back to looking at the picture of his friend at trunk or treat. He was talking about what jeans he would wear this year. I said to him what if he wore black jeans. He gave me the O look and started squinting his eyes. This was not what he wanted to hear. He then said that his friend was going to wear black jeans. This did not help his process. And it started our spiral for the rest of the day.
The rest of the night kept me on my toes and seconds away from tears. He has had enough of no routine and I don’t blame him. I keep praying for the ice to melt but we are having extremely frigid temperatures race through again and they say there are possibilities of strong winds. He doesn’t understand any of this and getting him to understand this is all so hard. The licking, biting, and screaming were all on repeat for the night. I stood crying in the kitchen, singing words that were pouring out of me. I had to find a calm in the storm for both of us. “Lord, I need the strength of you to wash over me” I kept singing it over and over.
Bedtime finally came and he was ready. Thankfully by then his nose was so much better and I’m praying it doesn’t start again. And I’m praying harder that the ice finds a way to move from the area so he can go to school on Monday. Tomorrow is February. He knows it and I pray for a wonderful day ahead. His laughter is what I’m choosing to remember. The challenges of today are a reminder of the victories of tomorrow. Smiles to all and donut daze!
At this point, all the days are blending together and 14 degrees feels quite toasty. Owen’s nose was being nosy and that was not how I wanted our day to go. Before he even got out of bed he sneezed three times. He sounded nasally but he had no fever. I gave him some medicine and I hoped it would be gone before it started again.
He walked around analyzing the picture of him with his best friend at trunk or treat. This would become the theme of the day. He then told me about all the people in the background. In the picture, there is a super-sized pencil. He talked about eating the eraser as he did at school. Oh boy! Even super-sized sized he wants to eat it. I’m thankful there was no glue stick in the picture. I cannot get him to understand that licking and biting these types of things are not a good idea but the more you show any type of emotion about something the more it becomes our very pronounced reality.
I was between ice and a hard place and I sure didn’t want to rock any boats. I felt like I should stick with my plan of telling him we were not going anywhere until Wednesday. I was concerned that they would not have school on Monday because the ice hasn’t melted. I wasn’t going to let that control all my plans but it was easier to stick with it since he was on board and it helped him focus on an end date. Plus the mountain of ice that I faced if we went anywhere. I have a hard time walking on solid ground so I didn’t want to risk it today. Add in his nose and I stopped overthinking it.
For the boy who has never requested a party, he has now requested every party he can imagine. He wants a school party with hats, birthday glasses, and cupcakes. He also wants to have a bowling birthday plus his pool party that is already in motion. He also mentioned that Valentine’s Day was coming up and you had to be kind to everybody. There were so many more requests and ideas for the holidays.
He was walking around with his tablet and he was saying “I love you so very much I appreciate you” and other things I couldn’t hear. Then he said, “See Grandma on Wednesday.” I asked him if I could see his tablet and he showed me the screen. It was the text messages from his grandma. I said you can send her a message so he told me he wanted to say “I love you.” He typed it out with me helping him sound it out. He then told me he wanted his phone in his pocket. He put his jeans on and he at first wanted it in his front pocket but within a few minutes, he came back to me and wanted me to help him put it in his back pocket. The amount of growth is incredible.
His new information download to me was all the restaurants that did not serve him the correct temperature of food, forgot food, did not include the right, enough, or no sauces, and those that did not put our stuff in the bag he wanted. And of course which ones have what drinks and the color of the caps for the chocolate milk. On and on he went. The information he stored is like having a walking computer.
I think this is where our tides turned for the afternoon. Oh my. I threw a wrench in his thought process. He was back to looking at the picture of his friend at trunk or treat. He was talking about what jeans he would wear this year. I said to him what if he wore black jeans. He gave me the O look and started squinting his eyes. This was not what he wanted to hear. He then said that his friend was going to wear black jeans. This did not help his process. And it started our spiral for the rest of the day.
The rest of the night kept me on my toes and seconds away from tears. He has had enough of no routine and I don’t blame him. I keep praying for the ice to melt but we are having extremely frigid temperatures race through again and they say there are possibilities of strong winds. He doesn’t understand any of this and getting him to understand this is all so hard. The licking, biting, and screaming were all on repeat for the night. I stood crying in the kitchen, singing words that were pouring out of me. I had to find a calm in the storm for both of us. “Lord, I need the strength of you to wash over me” I kept singing it over and over.
Bedtime finally came and he was ready. Thankfully by then his nose was so much better and I’m praying it doesn’t start again. And I’m praying harder that the ice finds a way to move from the area so he can go to school on Monday. Tomorrow is February. He knows it and I pray for a wonderful day ahead. His laughter is what I’m choosing to remember. The challenges of today are a reminder of the victories of tomorrow. Smiles to all and donut daze!
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