I woke up early but managed to stay in bed. I got up and before I got out of my room Owen came bouncing in proclaiming he “slept upper night.” He was extremely happy that it was Sunday and he was getting to see his people however he wanted to know what he would be doing at summer camp, who would be there, and if I could tell him the weather of all the days leading up to that wonderful event. He also wanted to know if all his people would be wearing “pants degrees” clothing today. We had a busy morning but he was very happy with lots of anxious moments and he was still excited about his cross shirt that he wants to celebrate Christmas.
I am trying to plan different activities for him as the week goes by. We are going on the “bowling trip” as he calls it tomorrow and he is very excited about it. He knows some of our friends are going to be there and is happy that we get to go. He keeps talking about his grandma’s Christmas tree. He does not want one up at our house and has told me repeatedly. It is all interesting how he goes through the dynamics of it.
I randomly asked Owen for over an hour if he wanted something else to eat after he finished his breakfast. I fixed my breakfast and asked him if he wanted some of it or something else. No was the same answer. I sat down, took my first bite, and the food requests came in. I told him that I needed five minutes to eat and then I would get him something. The moral of this story is that I should have gotten up to fix it before I finished my food. He was asking me after each breath to come get his food. But there are lessons to learn for both of us. And then he walked away as soon as I gave him the requested second breakfast. This is not a new story.
We got ready to go to church and he wanted the confirmations to begin again. He was checking on which people he would get to see. He was happy to talk to our friends about their travel plans, what everyone was wearing, and his best friend’s eyes. And many other things. He had a great time at church and he wanted to go to Hardee’s for lunch before we headed home.
We got home and he had bowling, his vision therapy since he will only have his one therapy tomorrow, pizza, and Tuesday at grandma’s house on his mind. He was very ready for me to go get my bloodwork done on Tuesday and he wanted to confirm how and when he would be going to his grandma’s. He kept asking for hugs and wanted me to hear his laughter.
“The internet is unreachable,” he said as he sat waiting for the video to pull up. I told him that it was extremely slow. He said it again and then told me it was broken. He continued, “Go to get blood pressure.” I asked him what it was called and he said, “bloodwork.” He is learning so many new things and his understanding has grown in the last year with all my medical procedures. He has been very calm with it and we discuss the details in a way that he can understand.
Nighttime came and his laughter filled our home. He is very excited about tomorrow and can’t wait to get Thanksgiving break moving right along so he can get back to school. He told me I needed a hug and I sure did. We were both yawning so I have a feeling we will both sleep tonight. His prayer tonight was “dear God thank you for the bowling trip amen.” As I walked towards my bedroom he kept yelling “Amen I love you.” And there is nothing better than that. Through challenges we grow and today is your day to shine. Smiles to all and donut daze!
I am trying to plan different activities for him as the week goes by. We are going on the “bowling trip” as he calls it tomorrow and he is very excited about it. He knows some of our friends are going to be there and is happy that we get to go. He keeps talking about his grandma’s Christmas tree. He does not want one up at our house and has told me repeatedly. It is all interesting how he goes through the dynamics of it.
I randomly asked Owen for over an hour if he wanted something else to eat after he finished his breakfast. I fixed my breakfast and asked him if he wanted some of it or something else. No was the same answer. I sat down, took my first bite, and the food requests came in. I told him that I needed five minutes to eat and then I would get him something. The moral of this story is that I should have gotten up to fix it before I finished my food. He was asking me after each breath to come get his food. But there are lessons to learn for both of us. And then he walked away as soon as I gave him the requested second breakfast. This is not a new story.
We got ready to go to church and he wanted the confirmations to begin again. He was checking on which people he would get to see. He was happy to talk to our friends about their travel plans, what everyone was wearing, and his best friend’s eyes. And many other things. He had a great time at church and he wanted to go to Hardee’s for lunch before we headed home.
We got home and he had bowling, his vision therapy since he will only have his one therapy tomorrow, pizza, and Tuesday at grandma’s house on his mind. He was very ready for me to go get my bloodwork done on Tuesday and he wanted to confirm how and when he would be going to his grandma’s. He kept asking for hugs and wanted me to hear his laughter.
“The internet is unreachable,” he said as he sat waiting for the video to pull up. I told him that it was extremely slow. He said it again and then told me it was broken. He continued, “Go to get blood pressure.” I asked him what it was called and he said, “bloodwork.” He is learning so many new things and his understanding has grown in the last year with all my medical procedures. He has been very calm with it and we discuss the details in a way that he can understand.
Nighttime came and his laughter filled our home. He is very excited about tomorrow and can’t wait to get Thanksgiving break moving right along so he can get back to school. He told me I needed a hug and I sure did. We were both yawning so I have a feeling we will both sleep tonight. His prayer tonight was “dear God thank you for the bowling trip amen.” As I walked towards my bedroom he kept yelling “Amen I love you.” And there is nothing better than that. Through challenges we grow and today is your day to shine. Smiles to all and donut daze!
RSS Feed