I only woke up once last night and felt pretty good this morning. Owen slept all night and I think it helps that he is settling into his school routine. We both woke up after five. He would have probably slept a little later if I could have been quieter. He was extremely quiet this morning when he first woke up but he was happy.
I have been asking him what he wants to be for Halloween and he keeps saying Spider-Man but I am not sure if that is the official answer because he thinks that is what he should be since he was Spider-Man before. I haven’t started looking for a costume yet because maybe he will decide to be something else.
I finally got him to wear a different pair of shoes. The one pair he has been wearing since the beginning of school is starting to fall apart so I’m trying to prepare him for the change. He likes his “summer sandals” best but he likes to kick them off and play with them. I don’t want them to be a distraction at school.
As we were getting ready to go wait for the bus summer school became a big question again. He wants to make sure his schedule is uninterrupted with summer school and routine is everything g. He was off to school before he got upset about it. I wish he could be in the moment and not focus so much on the future constantly. He has come a long way but he still can’t be in the present. It’s hard on him when every single thing is not consistent.
When he got home he told me he talked to his teacher about summer school. I am not sure if it happened but I love that he is telling me things about his day. He was very calm about everything while he sat there eating his snack. I got him rippled plain chips because he kept asking about “red bags.” I’m not sure if these were exactly what he was talking about but he was thrilled by them.
He came to sit with me and started talking about fish for dinner. Then he showed me a video he was watching about eating. He described all the food on the screen and the scene he was watching. It’s so exciting to hear all these descriptive words. I have waited for conversations where he wants to tell me everything about his day.
He has been wanting to watch a “bedtime story rural mountain.” I asked him to show me several times over the last few days but wouldn’t show it to me. I tried to pull up videos I thought it might be but they weren’t the correct ones. Tonight he showed it to me and it ended up being the beginning of a Disney show. He wanted it projected on the TV so I pushed the button and he instantly read the code to me that appeared on the screen. He laughed in delight as it went to the TV and then we spent the next thirty minutes laughing about the shows until it was bedtime. The laughter and the progress are exactly what my heart needed. He is moving mountains.
Today was not a great food day for me but thankfully this round for my chemo infusion has not been as bad as the previous ones. Each day is a step forward and I’m thankful for how I’m feeling. Owen had a great night and I loved all the interactions. He is my miracle and I’m so very proud of him. Never give up on the hope for tomorrow. Be in the moment, look for the positive side of life, and know that the impossible can become possible. Smiles to all and donut daze!
I have been asking him what he wants to be for Halloween and he keeps saying Spider-Man but I am not sure if that is the official answer because he thinks that is what he should be since he was Spider-Man before. I haven’t started looking for a costume yet because maybe he will decide to be something else.
I finally got him to wear a different pair of shoes. The one pair he has been wearing since the beginning of school is starting to fall apart so I’m trying to prepare him for the change. He likes his “summer sandals” best but he likes to kick them off and play with them. I don’t want them to be a distraction at school.
As we were getting ready to go wait for the bus summer school became a big question again. He wants to make sure his schedule is uninterrupted with summer school and routine is everything g. He was off to school before he got upset about it. I wish he could be in the moment and not focus so much on the future constantly. He has come a long way but he still can’t be in the present. It’s hard on him when every single thing is not consistent.
When he got home he told me he talked to his teacher about summer school. I am not sure if it happened but I love that he is telling me things about his day. He was very calm about everything while he sat there eating his snack. I got him rippled plain chips because he kept asking about “red bags.” I’m not sure if these were exactly what he was talking about but he was thrilled by them.
He came to sit with me and started talking about fish for dinner. Then he showed me a video he was watching about eating. He described all the food on the screen and the scene he was watching. It’s so exciting to hear all these descriptive words. I have waited for conversations where he wants to tell me everything about his day.
He has been wanting to watch a “bedtime story rural mountain.” I asked him to show me several times over the last few days but wouldn’t show it to me. I tried to pull up videos I thought it might be but they weren’t the correct ones. Tonight he showed it to me and it ended up being the beginning of a Disney show. He wanted it projected on the TV so I pushed the button and he instantly read the code to me that appeared on the screen. He laughed in delight as it went to the TV and then we spent the next thirty minutes laughing about the shows until it was bedtime. The laughter and the progress are exactly what my heart needed. He is moving mountains.
Today was not a great food day for me but thankfully this round for my chemo infusion has not been as bad as the previous ones. Each day is a step forward and I’m thankful for how I’m feeling. Owen had a great night and I loved all the interactions. He is my miracle and I’m so very proud of him. Never give up on the hope for tomorrow. Be in the moment, look for the positive side of life, and know that the impossible can become possible. Smiles to all and donut daze!
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