Rinse repeat. That’s where I feel we are at with the sleeping thing but I’m getting stern. And being stern ruffles my own feathers. It’s hard sticking to discipline when discipline is met with a constant wave of questions and emotions thrown at you for as long as the discipline is in action. Owen woke around three and he did not want to go back to bed. He chose to keep his tablet until I went and took them all. I still haven’t given him the remote back yet. It was almost five by the time he laid down and it wouldn’t be much longer until it was time for him to wake up. He wanted his tablet again and I told him that he couldn’t have it before school because of his behavior in the middle of the night. I told him he could do anything else so he brought a book to me and started reading. Mission accomplished I thought. He read another one and then he ran off to play but kept coming to me to tell me he wanted his tablet. I told him I kinda knew. When we got outside to wait for the bus he wanted Siri to translate a sentence about the tractor instead of his usual request for milk being translated into phrases. I thought it was wonderful progress. He knew that it was therapy day and “mommy going to pick me up” is what he kept saying over and over again woven between the other phrases he wanted me to request from Siri. I kept wondering if he was worried we would be going on a trip again and miss his favorite day. Over the last few days, I’ve spent numerous hours researching my theories about Owen’s hearing and visual responses to the blue pants. Today I got a call back from his eye doctor and it helped so much with my prescriptive. I keep thinking about how he looks at my clothes and it creates happiness if I’m wearing what he wants but if I’m not it creates anxiety and meltdowns. So to me, the visual response creates the meltdowns. It’s like it causes the reaction in his brain to process the information. It sits in there like a train wreck waiting to cause the stimuli. There is still much more research to be done but I feel like we are getting closer. When you think there is no hope turn one more stone over. Never give up. There is hope. When I picked him up from school I talked to his teacher about everything and she was going to look up the different therapies available that might help him. He had wonderful therapy sessions and wanted to go “ride the tractor with Goofy” again. I told him we could ride the tractor but I’m not sure if Goofy would be there. He did amazing and only wanted to sit on the red one with the squeaky seat. He immediately told me “take it with you.” I told him we couldn’t today but maybe one day he would own one. The night went quickly and he was asleep before his head was even on the pillow. I hope he sleeps tonight and has a great Friday. We might go to the park tomorrow before the rain is supposed to hit tomorrow night or Saturday. I’m thankful for a team that supports us with all of the challenges we face and the victories we win. Even in the storm, the sun will begin to shine. Today may be filled with those challenges but it makes the victories that much sweeter. Smiles to all and donut daze!
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I'm Lynn Browder. Owen's Mommy. The best moments in time are when I get to see the smile on his face and that giggle come from his heart.