I feel like we made progress today. Thankfully Owen has not acted like or shown any signs of sickness. He seemed tired but he was still pretty energetic all day. I feel like he is really starting to understand his use of words and he is interacting more with Siri and Alexa to get them both to understand what he is saying. There are still letters he has problems with and words become muffled or he will run them together trying to say them. The word “singers” he has an extremely hard time with because of the S in the beginning and the hard G sound for him. He says the word and almost leaves both of those letters out. I think about how far he has come though. He used to ask me to find every single video he wanted and sometimes this would lead to huge meltdowns because of me not understanding what he wanted. Now I remind him to speak slowly and tell him that he is doing an amazing job. I don’t want him to feel frustrated or lose hope when he is doing it. I also remind him that Siri and Alexa don’t know everything and they are limited to what they can connect to. He had them dueling again for languages. It’s great to hear him having conversations with them. And again I think how far we’ve come. I still wonder how many languages he understands and how many he knows. He can sing in more languages than I can count but I can’t always ask him a question and he responds with a correct answer or responds at all. Questions are not always something that he comprehends or can relate to. It can take him twenty minutes to answer me or it could even be the next day but his memory is long. He has talked to me about something that happened when he was much younger and he will ask about people he hasn’t seen in years. He amazes me. I don’t think the dude stopped eating today. However, he did not like my food choices. He can tell what I’m eating if he is in another room and this can completely upset him. He used to love peanut butter. Today I was going to give him some. He came into the kitchen and I said, “have a bite”. This had him screaming, “it’s a peanut butter butter butter” and off he ran to the living room, threw himself on the ground, and his feet were up in the air. The smell, the sound, the look of it, something has changed for him so this truly was a hard moment for him and not something that he just didn’t want to eat. I try to be aware of the differences with him and what he can handle. Overall he had a really good day. He even played Old MacDonald on the ukulele for me, without me asking. I told him that he had to play with his toys instead of only his tablet and he went to his instruments. This made my day. My miracle music man makes this momma happy. Find your happiness, share your joy, and know that you matter. Smiles to all and donut daze!
I'm Lynn Browder. Owen's Mommy. The best moments in time are when I get to see the smile on his face and that giggle come from his heart.