I’m finding sleep for myself very difficult lately. The weight of the world sits heavy some days. And then I miss my brother. Grief is a beast. I never realized how much I counted on his wise words of wisdom or at least used him as a sounding board.
Owen slept all night and woke up ready for Tuesday. He wanted all his Monday things but he couldn’t stop thinking about Tuesday. He for some reason wants to get to that day even though he is talking about today and all that is going on with today. Maybe it was so he knew he was back to routine. He was concerned about the Tuesday bus too. I think he missed the fact that he rides the bus to and from school on Tuesday. I can only imagine what he is thinking and know that he misses his routine. He was also concerned he would have to help fix the bus so he asked me to give him a screwdriver. I reassured him he would not need a screwdriver and it would be fine.
He had a good day at school. When I picked him up for music therapy he started talking about the bus for Tuesday again. He said, “You got it ride the bus home ride the bus school.” I once again reassured him he would be going to school tomorrow.
His music therapist said he changed it all up on her. He wanted to talk about pajamas, play-doh, and coloring with markers. He talked about this all the way there. I had no clue why. I didn’t say anything to his therapist about it when we got there. She pointed to the new board in the lobby and they had redone it with those things he wanted to play with and talk about. I remembered after we left that when we were there the last time they told him they were redoing their board with a winter theme and he remembered. He never forgets.
When we got home he told me he wanted waffles for his snack before his vision therapy and when I was making them I got a banana. He told me to come sit on the couch and he sat next to me smiling from ear to ear watching it back and forth under the blanket. He was laughing and had a huge smile. He’s come a long way. He still wanted me to eat it quickly but he at least was far from screaming and then threw the peel away for me.
He did great at vision therapy. We saw one of our advisors with her son. He was fascinated by her son chewing gum so she gave Owen a piece. He tried the tiniest of pieces but he chewed it. Then he took it out of his mouth but huge progress.
He did great with his doctor. She had him do numerous exercises and he was able to do them all. I loved watching him quickly focus on the different areas she wanted him to look at.
When we came home he had asked to go by what he calls the “skeleton” building but he didn’t want to go by the “bridge flags.”He sai,d “close your eyes” so I’m not quite sure when that skill or knowledge was acquired but he told me not to go that way and he wasn’t closing his eyes. I told him if he didn’t want to see it he better because that’s the way we were going since he wanted to see the skeleton. He said there’s an accident you gotta turn around. There wasn’t but now that is his answer to any direction he doesn’t want me to go since he seen those accidents. He is quite the problem solver now.
When we got home he kept asking to see his friend tomorrow. I’m glad he makes friends and wants to see them. The night went quickly and he was extremely ready to go to school tomorrow.
I’m thankful for his progress and his big heart. Find your passion and show the world what you are made of. Smiles to all and donut daze!
Owen slept all night and woke up ready for Tuesday. He wanted all his Monday things but he couldn’t stop thinking about Tuesday. He for some reason wants to get to that day even though he is talking about today and all that is going on with today. Maybe it was so he knew he was back to routine. He was concerned about the Tuesday bus too. I think he missed the fact that he rides the bus to and from school on Tuesday. I can only imagine what he is thinking and know that he misses his routine. He was also concerned he would have to help fix the bus so he asked me to give him a screwdriver. I reassured him he would not need a screwdriver and it would be fine.
He had a good day at school. When I picked him up for music therapy he started talking about the bus for Tuesday again. He said, “You got it ride the bus home ride the bus school.” I once again reassured him he would be going to school tomorrow.
His music therapist said he changed it all up on her. He wanted to talk about pajamas, play-doh, and coloring with markers. He talked about this all the way there. I had no clue why. I didn’t say anything to his therapist about it when we got there. She pointed to the new board in the lobby and they had redone it with those things he wanted to play with and talk about. I remembered after we left that when we were there the last time they told him they were redoing their board with a winter theme and he remembered. He never forgets.
When we got home he told me he wanted waffles for his snack before his vision therapy and when I was making them I got a banana. He told me to come sit on the couch and he sat next to me smiling from ear to ear watching it back and forth under the blanket. He was laughing and had a huge smile. He’s come a long way. He still wanted me to eat it quickly but he at least was far from screaming and then threw the peel away for me.
He did great at vision therapy. We saw one of our advisors with her son. He was fascinated by her son chewing gum so she gave Owen a piece. He tried the tiniest of pieces but he chewed it. Then he took it out of his mouth but huge progress.
He did great with his doctor. She had him do numerous exercises and he was able to do them all. I loved watching him quickly focus on the different areas she wanted him to look at.
When we came home he had asked to go by what he calls the “skeleton” building but he didn’t want to go by the “bridge flags.”He sai,d “close your eyes” so I’m not quite sure when that skill or knowledge was acquired but he told me not to go that way and he wasn’t closing his eyes. I told him if he didn’t want to see it he better because that’s the way we were going since he wanted to see the skeleton. He said there’s an accident you gotta turn around. There wasn’t but now that is his answer to any direction he doesn’t want me to go since he seen those accidents. He is quite the problem solver now.
When we got home he kept asking to see his friend tomorrow. I’m glad he makes friends and wants to see them. The night went quickly and he was extremely ready to go to school tomorrow.
I’m thankful for his progress and his big heart. Find your passion and show the world what you are made of. Smiles to all and donut daze!
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