Owen slept until after six. He was very happy that today was the day he got to eat with grandma and then he moved quickly to talking about being with mommy on Friday so he could get to his Saturday where “mommy goes bye-bye” and he spends time with his grandma again. He went through this repeatedly until I could convince him to stop and I gave him a big hug. I asked him to sing his scales with me, and in the middle of them, he asked if I would do them in Spanish. He always says, “Do them in Espanol.”I can’t wait until he can tell me all the languages he knows. We got ready to go to grandma‘s house and he kept talking about me going bye-bye. I told him I was going to leave for a little bit but it wasn’t like a Saturday or they would be going anywhere. In the car ride, I was trying to take his mind off of repeating his words, so I started asking him what he was thankful for. He said, “Elephants, robot, rollercoaster.” I’m not sure where those choices all came from but the robot is his robot BeatBo and he is starting to like the toy rollercoasters again. Before we left, he decided he wanted to play with his rollercoaster and asked me for a new yellow one so I think it was on his mind. I once again started distracting him from repeating his words and asked him for more favorite things. Again I wondered where chocolate, bagels, and broccoli came from. We got to Grandma‘s house, and he was very excited to be there. I left for a little bit, but it wasn’t long enough. We got our food and we sat down to eat. I tried several of the foods with Owen before I made his plate and he liked them until we sat down. He wasn’t interested in sitting for lunch. He did pretty well at first, but he wanted his tablet and to play on his grandma’s computer. We stayed there for a couple more hours, and then we got ready to leave. On the way home. It was a process. I’m trying to get him to understand that we can do other fun things on his days off. He tries to click the days off and not focus on the moment. I told him that we could do something tomorrow, even though he wants to stay home so that he can be prepared for Saturday. after many hours of talking about it, he finally asked if we could go bowling tomorrow. Then he asked if his friends could go. I said I would ask their moms. Trying to get someone to understand that they don’t have to continuously say the same things is a hard process. He will scream the same thing over and over and over and over again until I finally answer him. If I let him scream it then can turn into a meltdown. He stood there, screaming, and I just started to cry. At first, he screamed more, and then he crawled into my lap. He gave me a big hug, and I knew even more there’s so much to this emotional journey. The screams and repetitive behaviors are a mix of learning how to communicate and learning how to express emotions. Plus, he likes to see how it affects me. Sometimes the air moving through the vents sounds so loud. There is never any quiet and I’m always listening for the next noise. Today was hard once again missing my brother Richard knowing that it’s been almost 2 years since he’s been gone. When we walked into my mom‘s house, Owen immediately started talking about my brother and I know there will always be that connection. Each day I pray for more understanding for tomorrow. He fell asleep, asking for his friend repeatedly, and wanting to know if he was coming with us tomorrow wherever we might go. Find your victory in each day ahead. Smiles to all and donut daze!
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