I know how much routine means to my sweet baby O and last night proved it. Owen woke at two asking about all his days ahead. Not seeing his grandma yesterday threw him off. He realized when we got home from the farm he wasn’t going to see her. He was the one that kept telling me he wanted to come home to take a bath but as the night went on I could see the impact it made on him. I told him that we could take a pizza to his grandma on Tuesday or Wednesday. He woke up talking about Tuesday but was also concerned about the other days as well. He wanted to remind me that he doesn’t see his music therapist tomorrow. She made sure to tell him when we left last week that he wasn’t going to see her for two weeks. Telling him is a good thing but the ripple effect of days forward can be hard. I know with so many things it is the right thing to do though, unless it’s not. That’s when the overthinking comes into play. I tried to get him to go back to sleep at two and three and four and five and even at six I didn’t give up hope but no more sleep was to be had. One of the hardest parts yesterday was he thought he was going to see his “Uncle Wichard’s house.” I think it was the long, windy drive to the farm that maybe reminded him of going to North Carolina or maybe it was something else. He randomly brings up my brother and it’s all a part of the emotional journey. He hadn’t mentioned much about the day and then he randomly said “farm.” He started watching Mickey and Donald on the farm on his tablet. I think as overwhelmed as he was yesterday he also had an incredible time. He is constantly taking both his tablets and won’t leave one to charge. This is my lesson to learn, not his. If they are in his reach he is going to get them both. He knows they need to be charged but from there, it’s a hard concept. He gets upset when they are not charged but until I can make him understand this is something I have to rectify and help him through. Sometimes the mental exhaustion alone is hard. When I need to open a drawer in the kitchen I am constantly wondering if me opening the drawer at the wrong time is going to cause the next meltdown. It’s not like walking on hummingbird eggshells it’s more like walking on ostrich eggshells. I try my best to create a calm environment while helping him learn through situations that cause different behaviors and emotions. He is ready for tomorrow and focusing on the fact that he isn’t seeing his music therapist tomorrow. We worked on phrases he could say to his teacher so she would know to send him on the bus home. I will send her a message in the morning so that she knows what he is trying to tell her. We work together on ways for him to be able to communicate with her about things like this helping to promote more independence for himself. It is amazing how much he remembers and is starting to explain his emotions. He realized again before bed that he didn’t go to church today and that he missed seeing his grandma. He was thinking through the days ahead and taking his grandma a pizza. He’s not so sure about pizza because now he is saying dinner first then grandma’s car. He is also trying to figure out how he can go to church. I’m hoping these do not cause him to wake up in the middle of the night again. He’s come an incredibly long way. He was trying to spell “Curious George phone” and he spelled it “fone” but that’s amazing and beautiful and brilliant. This is the little boy doctors told me might not talk. Not only can he talk but he can spell and he can speak many languages. He’s currently asking Siri how to say numerous things in German. Sometimes miracles don’t happen overnight but they happen exactly as they should. Wait until you see your miracle. Smiles to all and donut daze!
I'm Lynn Browder. Owen's Mommy. The best moments in time are when I get to see the smile on his face and that giggle come from his heart.