Sleep happened. I was thankfully Owen slept and I pretty much did. It is never one of those things I do much of anymore so sleeping hours in a row feel glorious.
The repetitive behaviors and words can be daunting sometimes, most of the time. The strategies for getting past a behavior and making the behavior stop are two different things. And nothing seems to be working for any of it.
When you at beyond smart and don’t forget a thing -ever it also becomes even harder to outsmart the smarty pants of my son. His brain needs constant reassurance and the reward pathway is one more thing we are all researching to see how he handles it. He can’t focus in the moment. He is always days ahead and trying to make sure everything happens the same way.
For years I have tried to figure out how to distract his mind from a lady with a dog that stood on a corner and our electricity being out for a day when someone hit a telephone pole. I would have to look back through time to even remember how long ago these were but he will still focus on them and have meltdowns because of them. Now enter the storms of 2024 and my heart aches for the years of distress these will cause for my sweet baby O. Tears form in my eyes thinking about how many times he has asked me about the days ahead because he is worried he won’t get to go to school or therapy. I can’t even think about the summer break and him moving on to middle school.
He was excited about church today but he also wanted to know what was happening the rest of his week. On the way to church, he asked about seeing his friends. One is out of town and another he keeps hoping his parents will let him come to church with him. My sweet baby O has a heart of gold.
He did great on the way to church but on the way home he told me all the things he shouldn’t do and he didn’t do them. He asked if he could take his tablet to his therapy. I told him he could if he behaved. He made sure he didn’t. He laughed the whole time and started doing the behaviors he wasn’t supposed to be doing. I told him that he wouldn’t be taking his tablet with him so he moved on to where we would be going and kept yelling about it. The process is emotional for me.
He asked me multiple times to put my hair up in a ponytail. That is something that I never imagined I might be able to do again around him and now he is asking me all the time for it. I think because he watches a cartoon that has a character that wears a ponytail. When he was little he would have huge meltdowns over me even pulling my hair away from my face or shoulder let alone pulling it up in a ponytail. It’s progress, amazing progress.
The night was a rollercoaster even though he was calm he was very elevated and ready for his Monday. There were moments of mischief that I could tell he was trying to push my buttons and those moments where I needed to keep him calm. All and all it was a good day. I’m thankful for his growth and I pray for my own growth as we continue growing together. Be inspired by the world around you and know that you can make a difference. Smiles to all and donut daze!
The repetitive behaviors and words can be daunting sometimes, most of the time. The strategies for getting past a behavior and making the behavior stop are two different things. And nothing seems to be working for any of it.
When you at beyond smart and don’t forget a thing -ever it also becomes even harder to outsmart the smarty pants of my son. His brain needs constant reassurance and the reward pathway is one more thing we are all researching to see how he handles it. He can’t focus in the moment. He is always days ahead and trying to make sure everything happens the same way.
For years I have tried to figure out how to distract his mind from a lady with a dog that stood on a corner and our electricity being out for a day when someone hit a telephone pole. I would have to look back through time to even remember how long ago these were but he will still focus on them and have meltdowns because of them. Now enter the storms of 2024 and my heart aches for the years of distress these will cause for my sweet baby O. Tears form in my eyes thinking about how many times he has asked me about the days ahead because he is worried he won’t get to go to school or therapy. I can’t even think about the summer break and him moving on to middle school.
He was excited about church today but he also wanted to know what was happening the rest of his week. On the way to church, he asked about seeing his friends. One is out of town and another he keeps hoping his parents will let him come to church with him. My sweet baby O has a heart of gold.
He did great on the way to church but on the way home he told me all the things he shouldn’t do and he didn’t do them. He asked if he could take his tablet to his therapy. I told him he could if he behaved. He made sure he didn’t. He laughed the whole time and started doing the behaviors he wasn’t supposed to be doing. I told him that he wouldn’t be taking his tablet with him so he moved on to where we would be going and kept yelling about it. The process is emotional for me.
He asked me multiple times to put my hair up in a ponytail. That is something that I never imagined I might be able to do again around him and now he is asking me all the time for it. I think because he watches a cartoon that has a character that wears a ponytail. When he was little he would have huge meltdowns over me even pulling my hair away from my face or shoulder let alone pulling it up in a ponytail. It’s progress, amazing progress.
The night was a rollercoaster even though he was calm he was very elevated and ready for his Monday. There were moments of mischief that I could tell he was trying to push my buttons and those moments where I needed to keep him calm. All and all it was a good day. I’m thankful for his growth and I pray for my own growth as we continue growing together. Be inspired by the world around you and know that you can make a difference. Smiles to all and donut daze!
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