I think the night air woke me at every stir but thankfully Owen slept until five. Then I was a bee wrangler in my bathroom before I even had a chance to get my coffee. When I talked to Owen his first word was “tablet.” I said, “Happy Easter.” He said, “We do Easter eggs.” I asked him if he wanted to go on another Easter egg hunt. He said, “No.” He did have a lot of other plans though. Out of routine means, he clings to hope that his routine will quickly return and my heart breaks a little more each and every time his routine gets changed because everything is harder and he can’t focus on even the little things like going to the bathroom or eating his lunch. He was ready to get his day started so he could go to church and then ride his bike. However, he was seeing much further ahead than this. He was ready for his Monday where he is hoping to see his grandma and then he is ready for his Tuesday where he is going to see one of his doctors and then he was ready for his Wednesday where he is hoping to go bowling and then he was ready for his Thursday, which is his favorite day and gets to see his therapists and the list keeps going. On our way to church, he started asking me about the body. At first, I wasn’t sure what he was referencing because he said, “bones” and that doesn’t always mean the body. Then he said, “You know what you can do you can reference it.” He went on, “skeleton you can YouTube that.” He started saying something that sounded like the bones but I’m not sure. We got to church and he was on a mission to get to class. He did great and afterwards he rode his bike around in the parking lot. I always have to remind him to stay near the park so that he doesn’t go by the cars when they are leaving. Afterward, we picked up our lunch and headed home. I am working with several of his therapists to try to get him to stop picking apart his food. In general, he was in a pretty good mood. He just wanted to get his day moving along, so it could be Monday. I’m trying to get him to focus on the day that we are on, but this is not always going over well. He also was very concerned about taking a bath, because that meant his Monday would come quicker or so he thought. He fell asleep with only coming to tell me once about his day. I’m thankful for another good day even if we were both a little anxious. There’s a beauty in a day, even in a very rough, tough, emotional day. The miracle continues and the melody of our heartstrings can be played and changed into a song that is worth singing. Find your melody and sing it from the rooftops. Smiles to all and donut daze!
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