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Beyond Wednesday

10/19/2022

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Some days I can’t process everything. Scratch that. Most days I can’t process everything. Today was one of those beyond-emotional days. My river of tears felt like it would never stop. And it pretty much didn’t until Owen came home. The closer it gets to November the more my heart breaks. Owen slept all night again. He seems like he is feeling much better but still has a little twinge of the stuff left in his system. He mostly listened this morning but the lights had to be off and back to clothes talk almost constantly as we got ready for the bus. When we went outside to wait he knew he was going to one of his therapies when he got home from school. He was very excited. The minute he got off the bus he started talking about his therapist and the doctor. I told him we were going to have a snack first and then go. I played a game with him holding the potato chips up. I held up two different size chips and asked him which was bigger or smaller. Sometimes he would point and sometimes he would say left hand or right hand but he always grabbed the bigger one and ate it even though he had a plate full of chips. I am trying to find exercises that stimulate different portions of his brain working on his visual perception and perspective. His teacher sent me a praise for Owen and I love to hear them. He has a hard time with any of his fine motor skills and it seems like they are getting harder for him but today she told me he was putting forth great effort to cut something. We got ready to go and off we went. I wanted to see if he would mention going bowling tonight when we passed by the bowling alley. About a mile before it he started saying “bowing bowing.” I said do you want to go and he said, “no.” I figured I would let him tell me what he wanted to do. He didn’t mention it again and I want him to understand it’s something we can do when we go to his therapy but it’s not something we have to do and he gets to help make the choice. His nose was running on the way to his session and he asked me to “blow his nose.” I handed him a tissue and he rubbed it. Progress was happening. When we sat waiting for his therapist he wanted to trade his iPad with another little girl’s because hers was bigger. He also wanted to uncross a guy’s legs so I told him that he could uncross his own legs but not someone else’s. I showed him how to cross his legs like the guy was doing and that he could do it himself. He sat with his leg crossed over to his knee for several minutes and then put it down. I asked him if he could do the other leg and he did. I talked to his doctor about more thoughts on his visual responses and he suggested a few exercises we might try and questions to ask the eye specialist. When we got home he wanted me to immediately change and then when I did he couldn’t handle that my clothes are anywhere while I’m changing. He immediately wanted them to be thrown in the trash. Not sure how I’m going to get him to handle this one. It took him an hour to stop having meltdowns because I sat my clothes on my bed while I was changing and he wasn’t even in the room and he was still screaming about it. The emotional rollercoaster strikes again. He fell asleep quickly and I’m praying he will sleep all night again. I’m thankful for his progress. That’s my glue. I see the twinkle in his eyes and the feistiness in his soul. He is making huge strides and I’m proud of every step he takes. Find what makes your happiness inspire your joy. Smiles to all and donut daze!
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    I'm Lynn Browder. Owen's Mommy. The best moments in time are when I get to see the smile on his face and that giggle come from his heart.

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