Two turned into three and four and five. No more sleep for us and lots of emotions about everything. Owen finally realized about five o’clock that I meant we were not going to the pool, we weren’t going anywhere. I had plans tonight to go do comedy but I was too tired to even think about it let alone remember my lines to even say.
Finding time for yourself is one of those self-care things that is supposed to be at the top of the checklist but when your own sleep schedule isn’t exactly perfect and then you mix in someone else’s sleep schedule there is generally not a lot of sleeping going on. I pray we find sleep tonight. And just because I’m exhausted or he is exhausted doesn’t mean we sleep.
Once the day got going he was much calmer even though he was focused on going back to school next week. He asked more times than I can even imagine about school on Tuesday and if he was going to ride the bus. I’m trying to get him to understand he needs to focus on the day we are on but how incredibly hard is that for him when all he wants is his routine? My mind spins thinking of all the specialists he has gone to over the years to help him with this but he has a way of working through any and all exercises we do.
“School next Tuesday,” he said repeatedly over and over and over again. He was his mantra for the day. Seeing his friend on Monday was great and also hard for him because he missed him. He wants to go places with him but he can’t. Hopefully, over the summer we will be able to do more.
“Do not pinch me,” Owen quickly said. He hasn’t pinched me in quite some time but those words come tumbling out of his mouth a lot. When he was little I would tell him we don’t pinch each other and I would also talk to him about how he would pinch his food instead of picking it up to bite it. Eating has been something we have worked on for years. His teacher would talk to him about crumbling his food because he would pinch a piece of it and then basically pulverize it so now he says, “Don’t crumble it” but technically he still does. Each step forward is a step though and progress is being made.
He wanted to fall asleep in my bed but I made sure he went to his bed. It’s always a guess where he will sleep better but he was already practically sleepwalking to his bed and was out within minutes. I’m praying for sleep for both of us.
He has his therapy tomorrow and I made sure that he knew that was the only thing we were doing because I didn’t want him thinking he needed to wake up to go swimming even though if he does sleep all night I might take him in the morning. He asked to go to Dairy Queen with his grandma after therapy so we will see how the day goes. I’m thankful that he was calm by the end of the day and I pray we get back on a sleep schedule for the rest of his break. Through the challenges of life, we learn to appreciate the victories even more. Celebrate your victories no matter how big or small they are. Smiles to all and donut daze!