The hardest part is the hardest part. And then you walk through it. Mondays are generally a good day for Owen, filled with things and activities he loves to do. But he never is seated in the moment. The time is always in the future even if it is something he is excited about doing. He talks all day or night about an activity and then when we go to the place or event he has moved on to the next timeframe of events. Thankfully sleep found him after lying in bed for quite some time, yelling about going to dinner with the “night Santa.” His mind fascinates me and is always full of interesting tidbits of information that come at you like you are walking in slow motion through a wind tunnel and two hundred people are whispering their secrets all at the same time. He forgets nothing that he doesn’t want to forget and it all comes rushing back sometimes at the same time. I got him out to wait for the bus and he went over that I was going to pick him up numerous times. I try to redirect him as often as I can but it’s not always easy to think of how to get him to focus on something else. My exhaustion is exhausted. He was excited when I picked him up to go to music therapy. He couldn’t wait to see his music therapist. They did lots of songs and changed the lyrics as they went along. It’s always interesting to me how much he wants everything the same but also wants to change the lyrics. I’m so thankful for his love of music and the support he gets. When we got there he was talking about a fire drill and when we left we almost had one because he wanted to pull the alarm. I have to convince him this is not a thing and that we don’t randomly pull fire alarms unless it is for a reason. I had a banana when we got home. He was not impressed with this and wanted to throw it in the trash but at first, he ran around with it and then finally threw it away. At least he is no longer having huge meltdowns over them. He was a little upset with me that I wouldn’t let him take a bath before we went to his vision therapy. He had a pretty good session. He started to do one of the activities like he did it when he first started going but then he changed to the correct way so it was a reminder for us where he came from. He did more writing activities as well and I can see his strength building with that. I told him after dinner he could take a bath. He wanted dinner to be quick and his goggles on for his bath. He mentioned it over and over when we were at his vision therapy. He got his wish and he had fun in what he is now calling the “house pool.” I’ve never wanted a real house pool more but for now, I will be calling the tub our house pool. He didn’t want to take his goggles off for bed but I finally convinced him to. Some days even in a sea of people the journey feels lonely and like no one else could possibly understand. But I’m thankful for the people that do and lift me up when I’m feeling blue. Knowing someone else has to walk the quietest walk because their bladder won’t stay asleep either is a comfort I needed. We all have a story to tell and I promise you someone else needs to hear it. Even on the long days, there is the gift of love, friendship, and life. Let today be a good day. Smiles to all and donut daze!
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