The lonely moments start when I want to talk to him about something and I know if I engage him while he is playing with his tablet it will be hard. He will start repeating something he wants to talk about instead of what I need to share with him or what I want him to talk about with me. He can’t always process it and that’s difficult. He is making incredible progress but it is still difficult when I want to have a calm conversation with him. I breathe.
He wanted to make sure I was not staying when I dropped him off with his grandma. “Mommy go bye-bye,” he repeated over and over again, no matter what I said or didn’t say to distract him. We got ready and he mostly listened to instructions. On the way, I reminded him that he was brilliant and that he can do anything if he set his mind to it. I want him to realize he has control over his words and actions.
He stayed for many hours and when I picked him up he did well on the ride home. We talked about all the things we could talk about and the words he could use. I explained we could go someplace if he wanted to and he said, “Go to a carnival on vacation.” I told him if that’s what he wanted to do we could go on summer vacation. I hope that it is something he wants to do one day.
The nighttime went quickly and surprisingly he didn’t take long to go to bed. He didn’t give in when the time went off immediately but once I reminded him about his tablet for tomorrow he gave it to me. He wanted to make sure he got it before therapy. some days I feel like I am figuring life out and other days I am thankful for putting one foot in front of the other. His smile was bright today and his laughter did my heart good. Be inspired and change the world. Smiles to all and donut daze!