It was an interesting morning, afternoon, and evening but all in all it went pretty well. Thankfully Owen slept all night. We were completely exhausted from yesterday. It was a lot of fun but when you overthink everything it is hard but I tell myself I have to stay ahead of all the curves. He woke grumpy but quickly changed his tune. He came to my bed with his tablet but I could tell he hadn’t gone to the bathroom. I told him if he wanted his tablet he needed to go first. He screamed and I continued to the bathroom. He quickly followed suit. He was much calmer the second go around. We got back into my bed and he said, “eye doctor going to the eye doctor.” He never forgets a thing, never. I told him that I would pick him up from school and then we would go afterward. We stood outside waiting for the bus and it had been raining. The leaves were everywhere. He wanted to pick some up but they were all kind of stuck to the ground. I asked him what he was going to say to his teacher when he got to school. He said, “hello.” I asked him if he would say anything else to her and he said, “Happy Halloween.” The bus came around the corner and off he went. When I went to pick him up his teacher told me she had finally been able to get him physical therapy. I rejoiced. I may have cried a little. This is something I have been asking them for years. I’m thankful that his teacher has kept pushing for it. He has physical therapy outside of school along with occupational therapy and speech but the extra therapy at school will be wonderful for him. His body has clearly regressed with some of his skills and he still lacks body awareness in numerous aspects. It’s exhausting fighting for something that is so obviously needed and would benefit him for all of these connections. Before his eye appointment, we came home to get a quick snack, and then we were off. I reminded him again that they don’t wear blue pants in this doctor’s office. I wanted him to know that he would see the doctor wearing something else. Little did I know it would be a costume. When we got there the doctor said she had wanted to wear blue pants but forgot what day he was coming and they dressed up for Halloween. In a way, though it was good for her to see what he does when he is around someone that doesn’t have blue pants on. She was very kind about everything and she was good with Owen. He got through the test of matching objects and remembering details that you have to pick the correct items. It’s hard to judge something like this with him because he likes to give wrong answers so he can get a rise out of someone. Once we were done the doctor explained that she would score this test and she talked about us coming back the next week for the second part of the evaluation. She agreed that no matter what the scores were she believed the visual processing training would help him strengthen his point of view and how he looks at the world. I think it will help his physical aptitude as well. There’s an emotional riptide that is attached to going to doctor appointments. I know it is going to be hard for Owen to process. Sitting in the waiting room is the first step and the first rollercoaster ride. Two gentlemen were waiting. One had on blue pants the other did not. He wanted to immediately tell the one man in black pants to leave. I knew that if I didn’t keep reminding him to sit down he would have gone right to the guy and started pulling on his pants. The guy told Owen he usually wears blue pants and he agrees to wear them tomorrow. They called him back for his appointment and we talked to the other man in blue pants. All these steps wash over me like a waterfall. I have to mentally prepare myself to go places with him because I know how hard it is for him and how many hours of meltdowns this one thing has caused him. I pray there are answers in showing his brain other possibilities. One day at a time I remind myself. When we got home I told him we would be going next week to another appointment. He said no and then told me he wanted new glasses. I reminded him tomorrow was November and he screamed no and walked away. Acceptance was not there yet. Without me saying it again he said, it’s November feet in the chocolate.” These are the times you just go with it. I’m not sure why feet are going in chocolate. After dinner, he pulled up different videos and then got the corresponding books we have with them and read them. I love his love for books. The night closed with him screaming about wanting to take a bath after he had been screaming he wasn’t taking a bath. He took a shower. I pray for sleep and answers to come. I’m thankful that we are on the steps for more answers and help. Dance in the rain, sing in the sunshine, and with that find your inspiration to change the world. Smiles to all and donut daze!
RSS Feed