Sweet Baby O - Our Autism Journey
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Facing Thursday - our autism journey

1/18/2024

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Some days are just confusing. Lots of good, some middle-of-the-road, and too many please let’s have a redo moment happened today. But Owen slept all night.

The five in the morning wake-up call told us we would have a two-hour delay for school. Bus math has never been my strong suit. It should be simple but I overthink it all. I remind myself it’s right there in the equation but it still is something I like to overthink.

I tried to be quiet when I got my coffee but I could already hear him. At least he slept all night. That’s what I kept telling myself. I got my coffee and I fixed his breakfast. Before I could finish he turned the lights off. He has gone back to not wanting any of the lights on and then when they are on he usually attempts to turn them off every few minutes unless he wants them all on. It’s a cycle.

The morning was chaotic but it was nice to spend time with him. He wanted to make sure he was going to school and therapy. He sat with me on my bed for a while and wanted me to play one of his games. I love the mornings he wants to talk to me.

Bus math ended up not mattering anyway because the bus had a problem so I took Owen to school. They could have picked him up but he would have waited another hour or more so I decided to take him. This is one of those things where he was happy he was going to school but unhappy because he wasn’t on the bus.

The whole way there he talked about me picking him up from school. And when I picked him up for therapy the whole way there he talked about not going to school tomorrow. This had him on edge. They had prepared him for possibly not being at school but it is hard for him to process.

We got to his therapy and he did fine but they knew he was agitated about the days off and not knowing about his tomorrow. On the way home he wanted to go by the statues he loves to see and we talked about the snow. I tried to distract him but he is a moving train.

We stopped and got a pizza on the way home and we talked more about the snow. I told him we could build a snowman and he said, “No build a skeleton.” I’m not sure if he talked more about Christmas or Halloween today. I know he sang several Christmas songs and a couple in other languages.

The night ended with me singing Tomorrow more times than I can count because he wanted me to “sing it loud” so he could go to school tomorrow he told me. I’m not sure how that is going to work but we sang it a lot.

We got the call that we were in a state of emergency and school for tomorrow was canceled. I didn’t tell him because he would be very upset. Routine means everything to him. I know that he has to learn to adapt to schedule changes but it breaks my heart to see how hard something like this is on him. I pray tomorrow isn’t as bad as they think and maybe we will be able to go to the park or play on his sled.

I’m thankful for his growth. Even on these hard days, I try to remember where we have come from. I cherish his words and those moments with him. Every day is a miracle in the making. Make tomorrow your day for a miracle. Smiles to all and donut daze!
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    I'm Lynn Browder. Owen's Mommy. The best moments in time are when I get to see the smile on his face and that giggle come from his heart.

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