Darkness reigned again. The wind was blowing outside and the noises seemed to be loud everywhere. Four o’clock in the morning seems to be my new wake-up time. I stayed in bed as long as I could and then I had to get up.
I wasn’t as quiet this morning but it was later than yesterday. Owen woke with the same conversation as yesterday. “School school,” he said as he walked through the curtain hanging at his bedroom door. It’s one of the many things I’ve tried to block the light from reaching him.
The screams that have echoed through our walls because of lights are more than I could ever even imagine. I try not to think about it when he turns off a light that I want on. There are so many emotions attached to lights alone and I don’t want to sigh the wrong way because I know they will cause more screams.
He was a happy camper when he got up because he knew he was going to ride the bus to and fro from school. His theme was planning his Saturday of the “black computer” at grandma’s house.
After I got my coffee we came and sat on my bed. He was very calm and we watched the Curious George Halloween movie. We got dressed and headed outside to wait for the bus. He was so happy to see it. He gave me a big hug and they were off.
His words and actions sometimes mimic exactly what someone else sounds like or how they say it. “You know the answer mmm hmm,” he said like me with the same tones and actions. It amazes me how he can do it with so many different people.
His mind gets ramped up. I am hoping that he can settle tonight. He took his bath late and he was asleep in minutes. I pray he sleeps through the night and it’s not a typical Friday. He is surely ready to see his grandma though.
Each day we face challenges and each day we e can keep moving forward. I’m thankful for Owen’s amazing progress. Find your strength and let your world shine. Smiles to all and donut daze!
I wasn’t as quiet this morning but it was later than yesterday. Owen woke with the same conversation as yesterday. “School school,” he said as he walked through the curtain hanging at his bedroom door. It’s one of the many things I’ve tried to block the light from reaching him.
The screams that have echoed through our walls because of lights are more than I could ever even imagine. I try not to think about it when he turns off a light that I want on. There are so many emotions attached to lights alone and I don’t want to sigh the wrong way because I know they will cause more screams.
He was a happy camper when he got up because he knew he was going to ride the bus to and fro from school. His theme was planning his Saturday of the “black computer” at grandma’s house.
After I got my coffee we came and sat on my bed. He was very calm and we watched the Curious George Halloween movie. We got dressed and headed outside to wait for the bus. He was so happy to see it. He gave me a big hug and they were off.
His words and actions sometimes mimic exactly what someone else sounds like or how they say it. “You know the answer mmm hmm,” he said like me with the same tones and actions. It amazes me how he can do it with so many different people.
His mind gets ramped up. I am hoping that he can settle tonight. He took his bath late and he was asleep in minutes. I pray he sleeps through the night and it’s not a typical Friday. He is surely ready to see his grandma though.
Each day we face challenges and each day we e can keep moving forward. I’m thankful for Owen’s amazing progress. Find your strength and let your world shine. Smiles to all and donut daze!
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