These five o’clock starts are fine because it’s almost like Owen needs the quiet too. He goes from his bed to the bathroom and then picks up his tablet and sits on the couch. He didn’t turn his tablet up loud and played until I came into the kitchen. It feels like progress. I keep reminding myself to focus on the progress. It’s a very emotional journey. There are so many times I try not to rock the boat because I don’t want to hear the screams. I get that so much is overwhelming to him but it is hard trying to figure out how to help him grow but keep the screams at bay. When I try to suggest things he might want to do the screams get louder, unless they don’t. He can only process so much. Anything new is met with questions, concerns, and him generally saying no. One day at a time and we keep moving forward. He had a great morning and after lunch, we went on quite the adventure. We left a little early for his therapy but he had a shortened session. We went to our church so he could ride his bike. I gave him a couple of other choices but he wanted to go ride his bike. Well, he mostly wants to walk it now. Then he asked for a donut so we went to get him one before therapy and then he didn’t want to eat it. He did awesome at therapy though and listened to directions. He had to read the instructions and do the actions. He did it. When we left there I asked him if he wanted pizza. He said no and he wanted to go to the gas station only I have no clue which one it could be. He then asked us to go to multiple underpasses and for us to “turn right at the skeleton.” I think too many pirates for us. He wanted to drive by the air conditioner, the green stop sign, the little church with a face and smile, and then the windows. He then decided he did want to get a pizza. He asked if he could take his tablet and I said yes. I opened the car door and he said next time. He told me he didn’t want to go. I think it was hard for him to process since it was a new restaurant for him even though he loves their sign and has eaten their pizza, he just hasn’t gone inside. The adventure ended with us coming home but there is always next time. He is supposed to see one of his favorite people tomorrow but he always has a hard time when it isn’t in the order he thinks it should happen. We will take it one step at a time and get through it. He had a great day and through the screams and valleys, he soared to new heights and climbed those mountains. I’m thankful for the progress he’s made and the smiles he shared with me. My heart hears the melody and knows the song he sings. Positive words and positive actions equal a positive life. Make today matter. Smiles to all and donut daze!
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AuthorI'm Lynn Browder. Owen's Mommy. The best moments in time are when I get to see the smile on his face and that giggle come from his heart. Archives
September 2024
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