I figured it was a long shot that Owen would sleep all night since he went to bed so early but I needed the sleep too and wasn’t far behind him. Right before four this morning I heard “help.” It wasn’t panicked sounding so at first I thought it was in my sleep. It came again. It was still a very calm request for help but I was awake this time. I yelled out to him to see if he could tell me what was wrong. Sometimes he just wants the blanket pulled up or the request for his tablet comes from his bed. On his bed, there is a bedrail and a tent. The tent has a flap and he will pull it down and then he steps on the bedrail. He pulled the bedrail out further trying to fix the flap. Neither was broken and it was quick to fix but he knew he needed help and wanted it back to where it was. Four o’clock, that was that. We were morning people and he told me to set the timer. This is a process and he is learning. I’m thankful the timer is starting to mean something to him but it’s hard when it is four hours until the timer is going off. He was excited because he was going to grandma’s house today and he was ready to go. Bodily functions are never easy to talk about but they are something Owen needs to learn. He is starting to get it but he doesn’t know the technical terms of what his body does. It’s not so much that he has to get the names right but if he knows he burbs that will help him to realize what his body is doing and then he can tell me when he isn’t feeling well. I try to explain this to him but most of what he understands then translates into what he calls bubbles for everything. All of his body makes bubbles. It’s steps forward though and great progress. I could have easily gone back to sleep but he was on a mission for grandma’s. I think I could have a decade of sleep and still need more. He seemed like his sinuses were acting up more than they had the last couple of days. We got dressed and off to grandma’s we went so he could play with her “black computer.” It’s not even hooked up to the internet but he loves restarting it and changing the background. He is extremely fascinated by computers and their file structure. I’m trying to get him some computer classes soon. Computers are why he started requesting to go to the windows. They are literally the windows in the building but I have to imagine they remind him of the files and the Microsoft Windows. I left him there and drove around looking at places he might like to go. We have a new pool near us and I wanted to see what I thought about it before I took him. Some places are too busy and others create hard moments for us when there are things that might get in our way. He doesn’t want places with too many lines. He doesn’t understand it. I gave him several hours with grandma and then I brought our lunch. He had been eating all morning so he wasn’t very hungry for it. We stayed there for a couple more hours and we got to see some of our friends. When we came home we had to stop at a store but I knew they would bring our order out to us. It was all on the app so I didn’t have to make a phone call. He was very upset that I didn’t call anyone. He took his seatbelt off and told me he want to “phone robot BeatBo.” I found it all interesting since he is only now starting to like the phone at all. We got home and it was a pretty quiet night. I’m praying for an early bedtime and that he is feeling better tomorrow. I called his doctor today and we are going to try some new medicine. I cried at a gas pump because my brother isn’t here. It’s amazing when I cry now. I miss him and I’m thankful for the impact he made in my life. Owen’s smile and laugh remind me of my brother and Owen sure loved “uncle wichard.” Never give up on the victory of tomorrow. Through each challenge we face takes us to the victories that matter most. Smiles to all and donut daze!
RSS Feed