Words were flowing as soon as Owen woke up. He had a mission though, “white bed.” He immediately went to the bathroom before I even got to him. I love days when he is calm and patient. He knew I needed to “get the coffee” and then we were off to the white bed. He was excited about one of his favorite days. He loves going to school and he knows he gets to go to therapy. I can tell his will to do what he wants is getting stronger because if I give him instructions he tells me “no” and does exactly the opposite. I can also tell the teenage years are not that far off. I want him to be able to make his own decisions and independence is a huge thing to me but he also has to be the kid and let me be the grownup. That’s easier said than done. Putting your foot down as a parent is hard and learning how to say the rules, follow through with them, and keep everyone happy and meltdown free is a whole other story. We learn, we love, we grow. He was very talkative while we were waiting for the bus and he was attempting to answer my questions while avoiding them completely. It’s part of the activities we are working on. He was so happy to see the bus turn the corner and off he went. When I picked him up from school he seemed tired but by the time we headed to therapy, he was ready to go. I took a little detour so I could show him one of the other underpasses. It still isn’t the one he keeps referring to but he loved it. When we got to therapy he wanted me to come in again. I was going to let him go by himself but I wanted to tell them how his IEP had gone yesterday and ask them a few questions I want to work on with him. He eats a wide variety of food but he has a hard time with the actual eating of the food. He mangles and mushes food and in turn, little pieces go everywhere. Plus he won’t open his mouth very wide and then he likes to put something in his mouth and then push it in and out again multiple times. It isn’t the structure of his mouth or tongue because he has been checked by multiple doctors and his dentist so everyone believes it is more of a sensory issue or another behavior so I am hoping that his occupational and speech therapists will have new exercises that will maybe work for him to get his mouth muscles opening up more. He also likes to put food in his toes so it leads me back to sensory. He did amazing at therapy today and he asked me to drive him by his beloved windows. When we got home he was talking about the days ahead and he immediately wanted to take a bath. He has been enjoying taking a bath lately even more than he used to and I thought it was a lot before. He is happy about it so he can have bubbles on his head and he still wants to be “red Owen” by pouring tomato juice on his head. When he was in the tub I took one of his pairs of jeans from the laundry. I washed it in the sink after showing him them semi-wet. He let me hang them up but he was not thrilled. I told him that they will dry and he can wear them to school tomorrow. He was concerned about them but he didn’t scream about them being wet. He kept saying “baby’s diaper wet they will dry” and I knew he was thinking a wet diaper is like his pants. It felt like a big day of connections. I’m exhausted but I’m excited for what will come next with my sweet baby O. Follow the melody in your heart and hear the song of your soul. Smiles to all and donut daze!
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