Last night Owen told me we couldn’t go anywhere today because we had to get in the car on Thursday to go to his therapy. I can safely say he stuck to his word. Trying to get him to go somewhere when he doesn’t want to is virtually impossible. And if I do make him go, even if it is a place he loves, it doesn’t go over well. That’s where we were today. He woke early, before four, and proceeded to tell me we had to get in the car tomorrow. Any and every break are so incredibly hard for him. He had a pretty good day but asked numerous times about all the things that are important to him. He burst out with “oh snap” at one point during the day. I remember it seemed like it was a phrase for a while but what video or person said it I couldn’t even guess. He never forgets a thing. The day was busy. I was on a phone call for the program he is on and he recognized the one lady’s name from only half hearing her on the call. He came numerous times to me while I was on the talking to make sure I was going to get off the call quickly. I used to never be able to make calls without him crying or screaming so it feels like progress. Something is always breaking, broken, or beyond repair, it seems in this house. Plus, Owen jumps a lot and doesn’t know his own strength so he pulls the doors off their hinges sometimes. He doesn’t know he is even causing anything to happen or that it’s a problem. I told him that I had to change so he would understand why I was in regular clothes when the guy was here instead of the pre-approved “dress” that he associates with staying home. He was in a complete meltdown when he got here because I spilled my tea on my jeans as I stood up to get the door. He had his tablet on me and I just miscalculated moving it. So he was screaming and went to get a towel to wipe off my jeans. Plus the tv wasn’t working right. Thankfully the guy completely understood. He asked about the guy numerous times when he left talking about his clothes and that he was allowed to wear white shoes because it was too cold. He stood blowing air with his mouth and he said, “it’s a tongue.” For added emphasis he was jumping off the couch trying to “get a bandaid please,” he said. I told him he absolutely did not need to jump off the couch for a bandaid trying to keep that thought at bay. He knows he is going to the “big slides” on Friday for his birthday but we can’t discuss it. He gets upset and overstimulated. I haven't said party too many times because he says “no no no” and runs or pulls my hair so I just say people are coming. You never know if he is dealing with it, processing it, or happy about the party. And I’m sure there is more to it. He lay in bed talking about his friends coming to the “big slides” and that made me happy. Tomorrow is his favorite day. He would be happier if he was in school but at least he gets to go to therapy. I’m thankful for his smile and that he wanted me to play his games with him today. Never give up on the hope for tomorrow. Your miracle is right around the corner. Smiles to all and donut daze!
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I'm Lynn Browder. Owen's Mommy. The best moments in time are when I get to see the smile on his face and that giggle come from his heart.