“Count to free”, Owen said. I had told him it was time to take his bath and he wanted to drag it out as long as possible. He said his teacher’s name more times than I can count. He wants the confirmation of what he is doing for his days ahead but it’s hard to explain to him what the days will bring when I still feel it might keep changing. I’m hoping that we can get back to our regular schedule but it all seems so hard to imagine right now and that routine no longer seems like our routine. I think about how hard all this has been on the world and on Owen in our little world. Some days I feel like he is really connecting to his surroundings and other days I beg him to use his words. He laid in bed for an hour making all kinds of squealing noises and rolling all over the bed. I try to hold him or do compressions but sometimes that doesn’t work. His own flip-flop moves seem to help him fall asleep quicker some nights. Although that still might be hours. He screamed for the blanket that was already on him, pushing it off himself only to pull it back up on him. He covered his head with it, still yelling about it and saying, “big hug”. I wish I understood why he wants to go back and forth with the blanket. He does this with other things as well, requesting something already in his hand like his tablet or milk. One day at a time I remind myself. I know he is making progress and that’s what’s important. He ate cottage cheese and beef steak for dinner. That right there is big time. We celebrate the littlest of victories because they lead to the biggest of steps. Celebrate your victories no matter how small they are. Make today matter. Smiles to all and donut daze!
RSS Feed