Owen slept again all through the night. When I got up to go to the bathroom I could hear him stirring. I stood outside his room listening. He couldn’t see me because of the blackout curtain I have hanging in the doorframe to keep the light from shining in his room since he doesn’t want his door closed. Any and all light can cause a whirlwind of emotions. When he came out of his room he immediately crouched on the floor. I said, good morning I love you. He said, “turn out the light” even though there were no lights on. I said, let me give you a hug. He got up and I hugged him. I told him to go to the bathroom and then I got my coffee. He went to the bathroom, turned out the kitchen light, and got to my bed before I was halfway back to my room. Fortunately, he did let me finish getting my coffee before he turned out the light. We didn’t have much time before we had to get ready but I like the new routine of our mornings being calm. He was talking about all his days, back and forth, saying he was going to school and not going to school. It was incredibly hard on him not knowing exactly what this week held for him. His teacher tried to prepare him that they might be out all week but they were able to go. He was happy he was going but it also confused him. He was talking about two sleeps until he got to go again, confusing the amount of time until he would get to go back. I wasn’t sure if his bus would be late but thankfully, it was right on time. We had spent only a couple of minutes waiting on it, talking about his day ahead with his vision therapy. Off he went and I prayed for a good day. He got home and he was stuck. He was concerned about the days ahead. He kept repeating that he would see his teacher on Thursday and then telling me he is going to breakfast with grandma. He said tomorrow he is going to see the tractors and dinner but no school. He then would say he was going to school tomorrow and then back to talking about Thursday. He talks me into circles sometimes, constantly saying the opposite of what is true and back to saying the right things. I need to focus on how to answer his statements. He had a snack and then we got ready to go to his appointment. I asked him questions on the way. What are you going to eat on thanksgiving, I said. His reply was, “breakfast” because we are planning to do that instead of a traditional dinner. It’s hard for him and going to breakfast seems to work best. He was happy to be at therapy but it’s always hard for him to concentrate. The doctor is providing us with great exercises that we practice at home. She is assessing his needs and is giving us the exercises based on those observations. He turns his feet inward and it has become more pronounced. He has been to several orthopedic doctors but none saw the need to put him through surgery or for special shoes. This is one of the numerous reasons I wanted physical therapy for him. The eye doctor showed Owen how to move his feet like a pigeon and a duck. She explained to me how he will hold his hands with this exercise and what it will do for him. She gave us some other exercises and played a few games with him. I’m very thankful for this opportunity to help him grow and learn from her. I can see how this will help him work with his whole body. The O is gathering his team. When we leave church he always wants someone to walk him to the elevator or all the way to our car. When we left today he at first said, “woman walk me to the car” pointing to one of the assistants. She went to get him lollipops that I almost said he wouldn’t eat but I got distracted by him tearing off part of a leaf from the plant by their front door and he almost tried to eat it. His doctor was there and so he asked her to walk him to the car as the assistant handed him the lollipops which made him drop the leaf. His doctor walked him to the car and as we were saying “Happy Thanksgiving” I started to buckle him in when he took the wrapper off one of the lollipops, took a couple of licks, grabbed it by the pop, and stuck it on the seat. He was done quickly but he’s never taken the wrapper off something like that and it was incredible to watch. We got home and the boy seemed to eat all night. It took a little longer to fall asleep tonight but I’m hoping he will get a great night’s rest. I’m not sure what tomorrow will hold but he has run the gamut of park, tractors, dinner, or nothing so only time will tell but I’m thankful for the days of progress. Live life to the fullest. Never give up on the hope for tomorrow. Smiles to all and donut daze!
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