Some days Owen’s hair is sticking straight up when he wakes up and that is how it goes for the day. With sensory issues sometimes it’s hard for him to let me brush his hair. And if I put water on it, that brings a whole different set of emotions. He was excited to get dressed and wanted to get out to wait for the bus even though he still had almost an hour. He woke a little bit early but sat with his tablet very calmly asking about why he wasn’t going to school on Friday. This continued until we got dressed. He was singing in Spanish this morning. He was also making sure his Thursday was intact and stating that he definitely wants to see his grandma on Friday with a “we’ll have to wait and see” added because I keep telling him I’m not sure if we’re going to be able to go to breakfast with grandma. He has Friday off for the holiday and he wants to see his grandma but I want him to understand that it’s not set in stone that we will actually get to see her. And if we do get to see her, he may not get to go to her house. I have to make sure that each holiday is not something that continues with the same expectations every time. We went out to wait for the bus, and he kept hugging my head. This is the type of hug he uses to get my attention because he wanted to answer about going to see Grandma on Friday. When the bus turned the corner the boy looked like he had won the lottery and was jumping up and down, throwing his hands up. He got on the bus and he started talking to the bus aide as they drove away. I am so thankful for their connection. When he came home from school, he did not want to go anywhere. We came inside and he immediately changed his clothes. He wanted his snack and he wanted to talk about seeing his grandma on Friday. This was the main topic of conversation for the rest of the night. He would come running to me and would say “No school on Friday.” he gets very upset when there’s a holiday or something that changes his routine. Bedtime came and it was the same question what will he be doing on Friday? I tried to get him to concentrate on one day at a time, but this still upsets him. I keep thinking about Thanksgiving and how many days off he will have. I try not to dwell on these moments, but I know how hard it is on him when he’s not in his routine. He fell asleep quickly and I pray he sleeps all night long. I’m thankful for his growth and that big beautiful smile. Live life forward and let yesterday go. Smiles to all and donut daze!
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