Days off are hard. Days off are very hard, beyond hard. I wish I could give Owen the same schedule every single day but that’s not how life works. That’s something that no matter how many times we go over it’s still hard for him to understand and to move forward with, especially when it is something he wants to do but at the time isn’t an option or going to happen. Thankfully we both slept. In fact, he slept until almost six. When he woke up, he came to me. He said, “good morning mommy how are you I’m fine.” He then started asking if he was going to see grandma today. I told him I wasn’t sure because she had other things that she had to get done and if we didn’t see her today, we would see her another day. That didn’t keep him from asking me every two seconds. Well more like every five minutes. It’s hard for him to understand that information is not going to change that quickly. He also is seeking that reassurance that I cannot provide him when I don’t know what is going to happen. It’s hard for him to understand that things do not always happen the way we want them to. He also gets upset if I don’t answer the way he wants me to. He wants me to say “in a little bit.” If I say “later” then he will continue to ask me until I say “in a little bit.” It gets exhausting trying to explain to him the difference between each phrase so you just answer the way that will keep him calm. That makes it hard too because he then will continue to want the phrase said the same way. I don’t always have the right words or the right strategy but I continue to try to get him to understand that we can use different words to express what is happening. I can tell he is growing again because he ate all day long. Once we found out we weren’t going to meet with his grandma. I told him that we would see her another day. He took it well, but he still asked when he was going to see her. He also doesn’t understand that even if we go someplace with her, it doesn’t mean that he is going to go back to grandma's house. This also meant we weren’t going anywhere else today. Once that adventure was taken off the table, there was nothing else he wanted to do. We did have a good day though lots of laughs, lots of tickles. He would yell out from his room that he wanted “one tickle please and one hug.” He would come running out of his room and right into my arms laughing the entire time. This went on randomly throughout the day. He wanted to make sure that he was going to ride the bus to school and then home. I told him that we had an appointment and I would be picking him up from school but he would be riding to school on the bus. I told him it was for his well check and he then was excited to go see his doctor. I always wanted him to know that his doctors and therapist are there to help us and he can tell any of us anything that he wants to. I never wanted him to be scared of doctors, so I always explained that sometimes they have to do things like check our ears, weight, or blood pressure, naming random things. I’ve talked to him about shots and blood but it’s a hard concept to explain. The night went quickly and he was ready to go back to school. He asked again about when he would be going to school, and if he was going to ride the bus, then he asked when he would see his grandma. I told him that we would see her one day this week for dinner. In life, we have to learn that things don’t always go according to plan and we have to understand when they don’t. He fell asleep extremely quickly, and I can tell he’s ready for his day ahead. His laughter is what I hold close to my heart. Today is the first day of the rest of your life. Let yesterday go and make tomorrow amazing. Smiles to all and donut daze!
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