I have to say I’m pretty excited. Owen will walk up to me with his tablet facing him where I can’t see the picture. He then asks me what something is on the screen that I can’t see. “What is it”, he asks repeatedly, waiting for me to answer. I’ve been going through the motions of moving myself, the tablet, or him so that I can see what the picture is. I explained to him that if I can’t see the picture or hear what they are saying I won’t be able to answer him. He walked up to me, asked me the question, and immediately turned around for me to see the picture. His hand was still covering the screen because he always hovers over the play button, but I felt like we had made huge progress. I explained that we would have to push play because even though I could see the screen I couldn’t tell what it was. He wasn’t happy that I wanted to push play. He likes to do it himself and make it stop every second to hear the noise as he turns it on and off. But I was still so pleased with his progress. He did this throughout the day and most of the time he would turn himself around to show me. It was a very robotic style move, but the nonetheless exciting to see. He was very talkative today, but his words did not match watch he was necessarily trying to express. And food has certainly not been one of his top priorities. The famous “throw it in de trash” line has been said to me many times over the last week. He’s eating pretty good in general still, but he has definitely wanted it all in his terms. Sleep did not come easily for him tonight. He threw himself all over the bed, slamming his body up and down into his people. I can only imagine all the sensory needs he tries to meet with this motion. He fell asleep again requesting the “big hug” and out he went. He was mostly calm today, but there were moments of sadness that washed over him. He asked for several of his activities that we no longer do and his eyes filled with tears wanting to fall. I tried not to cry on top of his tears. Our life is not always easy to explain, but the love sure is. Follow your dreams, open your heart, and strive to give it your all. Smiles to all and donut daze!
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AuthorI'm Lynn Browder. Owen's Mommy. The best moments in time are when I get to see the smile on his face and that giggle come from his heart. Archives
February 2025
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