Sweet Baby O - Our Autism Journey
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Until Wednesday

5/18/2022

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Nothing breaks my heart more than having a sad sweet baby O. Not much sleep for what seems like day a million. But at least Owen was happy when he woke up. His sleep cycle is all off again. When we were getting ready for school I told him he was going to the doctor for his referral appointment. He was so happy. He loves going and immediately started talking about seeing his beloved doctor and that she would look in his ears. He always says the words in a voice similar to hers, mimicking the cadence in her voice. He does this with phrases and words that he associates with people, characters, or even videos he watches. I told him that he needed to let his teacher know that he was going to the doctor and I was going to pick him up. I rehearsed with him words to say and I sent a message to his teacher that I had told him to let her know. I want him to be able to feel how conversation works without having to stress over everything he has to say to someone. Being able to at least repeat phrases and words leads to him learning his own communication style. And having his teacher know that he had something to tell her helped initiate the conversation on her side. He was able to tell her who he was seeing, why he was going, and I was picking him up. He even added in the floor number he pushes in the elevator. This is part that shows how he is learning to communicate in his style and expressing his interest. He loves his doctor and he loves that he has to ride the elevator to see her. When I picked him up his teacher and I discussed his day and all his accomplishments. I love all the support and interaction he gets from the staff at his school. The cafeteria staff always tell him goodbye when they see him and so many other staff members as well. Leaving his school the repetitive behaviors started. He kept walking heavily and then stopping to backtrack his steps before moving forward. It was completely drawn out and he needed to complete certain cycles more than once. On the ride to the appointment he talked so excitedly about seeing his doctor but once we were in the room it was a different story. The nurse came in and he immediately took his shoes off so he could get weighed but then tried to put them on numerous times, over and over, getting a little more frantic each time he did it. She was able to get all the checks in and my boy is growing. I’m glad to see all the food he is eating is making a difference. He has always been small for his age but he eats a lot. Once the doctor came in I felt him unravel even more and my heart sank. He immediately started crying because she was not wearing blue pants. Together we tried our best to comfort him. And he calmed enough for us to quickly go through the steps and then we left. His doctor was going to call me later so we could discuss further actions. I’m thankful he has such a caring doctor. When we got home Owen was completely calm again. His doctor gave me time to get home and settled in. When she called we went through some next steps and we have referrals and follow-ups set in motion. We all want what’s best for Owen. All of this is coming right before summer which is already hard on him because he doesn’t have the routine of school. I’m thankful he will at least have summer school but it’s such a short amount of time in the grand scheme of it all. Nighttime fell and I prayed for calm for my sweet baby O. I will move mountains to try to find solutions for him. He fell asleep spelling words and talking about science. I’m thankful that tomorrow is a brand new day. Each day we learn, we love, we grow. Find your inspiration, dream big, and watch your world bloom. Smiles to all and donut daze!
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    I'm Lynn Browder. Owen's Mommy. The best moments in time are when I get to see the smile on his face and that giggle come from his heart.

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