He was as happy as a lark that he slept all night. He was full of those words I long for and the emotions I crave. “I slept upper night,” he said with such enthusiasm. He quickly followed it with “Good morning Mommy” and my favorite “I love you school school school.” I took the “I love you” for me and him telling me how excited he was to get his day started but he may have been telling me how much he loves school. Either way, it was wonderful.
We had a busy morning. He was very hungry. He asked me several times to give him different foods. I love that he now asks for things he wants instead of me giving him what I think he wants. His food choices are expanding as well. I have always made him try different things but now he is asking for foods that he never liked before.
We got ready for the bus and he asked me if we could go to the park and then Tudors for dinner. I knew where this was heading but I played along. I told him that we could and he said, “No stay home.” I however didn’t tell him that his plans may change and that as much as he would like his new plans it might be hard on him. I had my infusion today and I never know if they will run long. The backup plan was his grandma would pick him up if it ran long. As the day wore on I knew the answer to that question. He was off to his exciting day.
I went to my appointment. I had to get lab work and see my doctor before my infusion. When I got to my infusion they told me that the doctor requested more drugs and it was going to be four extra hours. This meant Grandma would be picking Owen up. He loves going to see his grandma and I knew he would be happy but it would also be hard on him because his routine is so important to him.
He was happy to be with his grandma. He had lots of questions for her and was confused as to why his day was different but he was handling it. She said he had a lot of fun playing on the computer and ate several things with her. He asked to go drive around before they came to pick me up.
When Owen and my mom picked me up he immediately told me “You hurt my feet.” I said I’m sorry I hurt your feelings. He said, “And my foot” but is now saying feelings. My mom said he had so much fun at her house but he wanted me to know he was “disappointed” that I didn’t tell him she was picking him up. I told him I didn’t know until I got there I was going to have to stay all day. He told me “Next time know.”
When we got home he said, I have the “pee pee dance and have to go.” Off he ran to the bathroom. He said, “Stay home on Wednesday” and then told me he wanted to go “see the fish and Santa” tomorrow. He requested sausage dogs for dinner and kept screaming that he wanted to take his bath. I told him that he could take a bath as soon as he finished dinner. He said he was finished before he even ate.
Unexpected is the expected and today the unexpected meant more time at my infusion but I’m thankful to have number three done and one step closer to the finish line. Owen told me “slep all night” so hopefully we all will “slep.” Thankful for his progress each day. He sat in bed with me before his bedtime and he told me “I love you.” This is always the highlight of my day. Each day is a gift. Focus on the good stuff and let the rest go. Smiles to all and donut daze!