I needed to change the momentum of our day so I tried to have a dance off with him and about halfway through the song he was done with that. He turned off the music and went back to making his transportation requests for his birthday. He wanted me to put them on his calendar but I told him that we had to talk to our friends first to see if they could make all his dreams come true. It was the start of our very interesting day.
He was on the bus and was happy once he got on it. When we went out to wait for the bus he got water on his jeans probably from the porch railing. He was very upset. When I saw it I wasn’t sure what it was at first but as soon as I noticed he did. He has such a hard time with water spots but I didn’t even know what it was at first. We had a few minutes to get back inside, or so I hoped since the bus app stopped working. We were able to get him changed and back out. I started singing Wheels On The Bus and that helped. A couple of minutes later the bus took him off to school.
He recovers from the meltdowns quicker than I do. I have to give myself kindness and grace in these moments. There was no way I could have stopped him from being upset about the water. We just have to work through it. It’s been a while since he has gotten this upset so I will go back to putting water spots on both of us in controlled moments to help him work through his reactions. I always feel like I have to learn how to be ahead of the curveball but he also has to learn how to regulate his emotions.
“Drink chocolate milk Dr DiVita said,” he told me. I asked him if that is what she said and he immediately said, “Drink water.” I asked him if he knew why he was supposed to drink water. Before the answer was given he started talking to me about all his other doctors and therapists would tell him to drink chocolate milk. The little smile washed across as he said, “Helps your belly.” I told him that it did but his doctor wanted to make sure he got plenty of fluids when he had been sick. This is a new recurring conversation that we have been having lately.
His mood had changed greatly since being at school. He couldn’t wait to get to therapy to see everyone. His greatest concern on the way there was whether he was still going to be a boy on the 18th of March because being 14 on the 14th had gotten him a bit perplexed. He was excited about it though and wanted to know when he would be 18. I told him he would be 18 in 2030 and with that, he asked when he would be an adult boy. By then we were at his therapy and he was ready to “sit on the steps” and wait for his first therapist.
We got out of the car so he could sit on the steps. He could hardly stand it, he was so excited until his therapist walked out to see him. He was jumping up and down and then he got distracted by a lady who was dropping her daughter off but got in her truck to pull away. He was so happy about her turning the engine on and pulling away he was momentarily distracted by her but once he waved goodbye to her he was back focused on his therapist. He loves watching people park their cars and drive away.
Success. His physical therapist said he was able to regulate his emotions today and was very happy. She said he did great with all three of them. His occupational therapist was impressed with how far his cutting skills are coming along. When he came out the door with his therapist he said, “You are amazing.” I said, “Yes you are.” I was so happy he had a good day especially after how it began.
He wanted Chick-fil-A for dinner so we stopped on our way home. After we got our food he said, “Snow better it’s better snow gotta go bye bye.” He is completely over the interruptions it caused. And the big let down for the night is me telling him that he can’t have the ABCs giraffe learn and ride bike he had at his grandma’s house when he was a toddler. The amount of information stored in his brain is incredible. He found the toy on the internet and wanted me to order him one since I told him that we mo longer had it. I told him that he was too big for it. This did not make him happy.
Bedtime came and I was thankful that today was a much better day for him after it got going. I know that it will help if we can keep his routine going. I told him that I was proud of him. I always sing to him “You are amazing this I know you are amazing I love to watch you grow” and I let him know we are in this together. I’m thankful for his growth. Let today be your day to shine. Smiles to all and donut daze!
RSS Feed